Hello community. I believe you guys are mostly in the USA so I apologise if the time of night is bad. I’m just going to spit it out, I can’t have my Dad live with me anymore. I am 33 married with a child, currently 8.5 months pregnant with our second child. Our house is large and Dad moved in 3 years ago. This maybe be a low number of years but the 24-7 of it all is driving me insane. He’s 86 and a wonderful man, no doubt there, but the constant idiosyncrasies, his weird habits, the noises, lack of social graves and just blatant absence of manners is driving me mad. My marriage is strong but tensions are rising all the time and with two young children I see myself having some kind of breakdown. I can’t do it. He can self fund accommodation but he doesn’t want to leave our house. Everything’s done for him here. Why would he want to? My husband is a patient kind hearted man, but sex drive, romance and any spontaniaty have left the building. We are still a young-ish family and want our space. Please don’t condemn me for this post I have no siblings to help and my mother passed away 15 years ago. Any advice or even just someone say that they know what I’m talking about?!? Arrgghhhhhh thank you and lots of love. P.S, I don’t hatemy Dad I just can’t live with him anymore !!!!
I don't think you're a bad daughter. I couldn't do it either, and I don't even have little ones at home. All of your dad's habits that you're describing are typical of people in the early stages of dementia. Behavior changes, mood swings, and the loss of social graces are all fairly common signs.
We moved my dad to an assisted living facility three years ago. He's 91 now. He didn't think he would like it, and the first three days, he was adamant that he couldn't live there, but I asked that he give it a try for a couple months and promised that he could move back to his home if he didn't like it. He loves it there now. I think living in his own place gives him a sense of agency, because he has his own apartment and can make decisions about what he wants to do-- but it's all within a safe environment with professional staff.
He goes on outings and enjoys all the daily activities the facility offers, including exercise classes, concerts, movie nights, and field trips to baseball games, museums and art exhibits. Even though he has dementia, he has met a great group of new friends, all his own age, and he has an amazingly rich social life for someone with Alzheimer's. The facility keeps him busier than I ever could. If I had known he would be so happy there we would have forced him to move sooner.
Maybe if you approach it as a temporary solution like I did, your dad will agree to go along with it for a few months. Moving him now, before baby comes, makes a lot of sense.
It isn't good for either you or your new baby to be under such pressure - your highest duty is to your infant not to your dad who is manipulating you so he doesn't have to lift a finger - there is no reason why he can't help you out around the house - like folding towels or washing a few dishes which is reasonable
Your dad can but doesn't do things for himself - if he hadn't hoodwinked you into becoming his personal slave/valet/dog's body you wouldn't feel this way - why would he want anything to change because HE'S GOT IT SO GOOD NOW
may not like the change but he will settle in somewhere and you can come to see him. There is many avenues for Seniors these days.
I had to quit with my husband after 30 years and last 5 years of taking care of him. A serious situation came up and now I am with my daughter and getting around I just could not continue any more.
Firstly, you are "not" the worst daughter in the world. You are young, married with a toddler and have another babe in the oven. Living with someone whom has alzheimers or dementia is stressful enough as it is. With the added variables of a young family with very young children, it's a recipe for disaster. You are most justifiably frustrated and stressed out.
My mom was diagnosed with dementia last October. I took her to the movies and when we came out, I realized that she was saying things that did not make sense and, she thought I was her sister. I took her to the emergency room in a neighborhood hospital when her primary physician could not see her fast enough and, after running several tests, they concluded that she suffered a few minor strokes, which affected her brain.
I moved mom in with me in March of 2018 (from Miami to NY), after my dad passed away in October of 2017. My husband passed away from a massive heart attack in 2014 and my only sibling and older brother died in a motorcycle accident more than 30 years ago. In short, I'm doing a lot of the arranging and caring on my own. It is not easy but it probably would have been more difficult with a husband and children to care for.
I basically started reading a book on how to recognize and respond to certain behavioral traits, retained an attorney to help me obtain Medicaid for mom because I needed to get things done properly, as I arranged for an aide and put things in place for mom. I was on FMLA, which is an unpaid leave that protected my job for 2 1/2 months and I am paying for the aides now until mom is ultimately approved for Medicaid. It is a slow process and, thanks to the attorney, a trust account was established for my mom to ensure her eligibility for Medicaid. He is also doing other things so that my assets are protected in the long run but, for the moment, everything is very expensive.
I'm sorry for turning this into a vent session for me. None of this is easy but, please don't beat yourself up and do what is best for your young family.
Before my mom was released from the hospital, the case worker explained that, dementia progresses with time and my mom may get to the point where she will have to be placed in either a home or hospice. She warned me that my loving mom "may" end up not liking me very much but that some day, she would know that I did my best and what was in her best interest.
There is one other thing in my situation and that is that the EKGs performed while in the hospital revealed that she has a nearly sealed blockage of calcium deposits in the main valve to her heart. Because of her advanced age (85) and the dementia, she is not a candidate for surgery - the anesthesia alone could take her. So, I'm basically living with a ticking time-bomb that just happens to be my mom. Please don't misunderstand, my situation is not worse than yours - simply different and, none of this is easy.
I hope something of what I've written here is of help and or of use to you.
Dont be so hard on yourself...you’re at the worst stage of pregnancy and things probably seem worse than ever.
But what comes next? Three months of sleep deprivation with new baby! Are you planning to breast feed? If so, you’ll want more privacy and the freedom at home to nurse without worry.
Just to play devils advocate I suggest you consider, once you get dad to take care of himself, if dad can help with the toddler when new baby comes. He may be able to pick up some slack for you.
Al-in-all you have to do what’s best for you in order to be a good care giver or a mom and no one is criticizing you for it. Just shut up that inner voice in your head, because I suspect that’s what’s making you feel bad.
Good luck,
charlotte
With the new baby coming, it's the right time to get him to another living situation. Remember, he's had his life or at least 85 years of it. You and your husband and kids are just starting yours.
Mark65 is right about finding a geriatric manager. That should help you navigate the change and decrease any guilt.
My best to you.
Guilt meaning: noun
1.
the fact of having committed a specified or implied offense or crime.
synonyms:culpability, guiltiness, blameworthiness, wrongdoing, wrong, wrongfulness, criminality, unlawfulness, misconduct, delinquency, sin, sinfulness, iniquity; More
verbINFORMAL
1.
make (someone) feel guilty, especially in order to induce them to do something.
You are not doing anything wrong, or committed a crime. You feel bad you can't do it all. We all get that. But Guilt? Bad daughter?? No way. I have been care giving a very long time....about 12 years. In laws, mom, and now 96 yr old father. He is the sweetest man and I love him dearly but living with him? Been there and done that 9 yrs ago while he was recovering from heart attack. Thought it was going to be for a couple,3 weeks, turned into 6 mos. My whole life was put on hold. My sister (who has since passed) was very little help...ok, none. I stayed at their house and came home on Sat. at first and my sister would take over. Then she decided she just couldn't do it with her job and taking care of her teenage grandson. She had things to do and I didn't I guess. During the time i lived with mom and dad, my mother who had dementia went off the rails since her routine was completely off. She just couldn't understand (or remember) why I was there. I caught her trying to hit my father one time because he wouldn't get up and take her out to eat (which I had just fed them and something she would have never done in her right mind). So I was constantly watching her plus the fact she never slept which meant I never did. Finally I had to place her in a facility. I couldn't handle her anymore and was exhausted by her and my dad. I'm going on too long here but 6 mos. in I had had it. I told him we were going to sell his home and he was moving into an independent living. He didn't want to but he understood that I needed my life back. Luckily my husband was my rock here on earth and never said anything (traveled but would come over every chance he could to relieve me) plus my faith got me through the roughest of times, still does. Here it is 9 years later and I'm still taking care of him. I have moved him 4 times, hopefully this last one just a couple of months ago is the last (group home). I'm still exhausted taking care of him but he has declined so that I need to be in contact with all aids, nurses and drs. I see him almost every day, don't want to but..... Ok, again, sorry this went on way too long. Here are my suggestions: If he can afford it, YOU find 3 assisted living places for him to visit. Have lunch or dinner, yes, they will let you do that. Let him pick which one he likes the best. I went with the one that had the most men. He knows and trusts me enough that I only want the best for him. They have outings just about for everything. Your dad gets 3 MEALS A DAY, some only have 2 but he can fix a bowl of cereal and coffee hopefully, and HOUSEKEEPING. But remember what I started out with: You shouldn't feel guilty, bad? maybe a little until you get him there and get your life back. Good luck and may God Bless you and your FAMILY.
Consider hiring someone to come and care for him during the day. Sit down & have a talk with him - this is the alternative to assisted living.
I lived with an elderly couple and hired around the clock assistance. Once I got a stable, reliable group, the burden was so much easier and I started to feel more myself again, committed to care, but not drowned by it. They did 'call out' but it wasn't as bad as when I had unreliable help. God help & bless you.
i just cant understand how any older person wants to live with their kids or stay alone in their house waiting on meals on wheels or grub hub ... or no one ! to talk to.
My husband is like that ... i asked him about going to a car wash at a local assisted living facility to benefit alzheimers and he acted like employees were going to come rushing out with duct tape/wrap him up and take him inside. (Hes only 70 and just retired last year and has no health probs as far as i know.)
Im 78 and work at a call center and look forward to the day when we can live someplace where our apartment is cleaned ... hopefully ... regularly and meals are fixed for us.
(Yes ive eaten several meals there and sometimes my dining partner has been ... a little ... forgetful. But there are activities and van rides.)
my concession is that my daughter lives out of state but im not moving to a facility there ... yet.
anyway ... ive had long term insurance for at least 15 years for both of us and hope its not dropped before we can “enjoy” it.
If a person can afford to live someplace in a nice facility why would they want to live where theres only one person to care for them/waiting alone all day for them to come home/not giving them any privacy and taking away the pleasure of a regular visit instead of the child having daily drudgery.
Selfish/selfish/selfish.
Kindly I say though, "selfish" 3x seems a bit harsh, but I respect your right to have your opinion. I feel bad for those who want to be at home and those who are so very burdened. It's a really difficult situation. Most people want to be with their loved ones, not strangers, and maybe they can't afford it.
My folks do not want family to care for them either. They want to be in an assisted living place too BUT they want a family member to move closer to them to come and visit and for anyone to do that, that means they are moving out of state. My grandmother eventually moved into one and it worked out for her, but that was years after grandpa passed away.
Best of everything to you & your husband. God bless.
You did this for three years. I did it for 14 months in my home and I went to NY six (6) times to move him to Florida. Get him his own place!
Dont ruin ur life..u are too young. Maybe trying a respite in an assisted living. But with all u have going on it is not fair to u. He will be fine with other people his age.
Best of luck
And the little things you have to do, clean up what they can’t, make sure things are accessible to them. My mother-in-law is short, so she can’t reach most of our dishes. I have some set aside in a cupboard she can reach, but I feel like it is on me to make sure there are always enough dishes there because, if there aren’t, she doesn’t say anything, she get our Pyrex containers that she can reach which are then unavailable when I need them! I work at home and I had to stop working on a job so I could turn the closed captioning off on her TV.
My husband tries to make sure I have some time to myself and I have been going to see a movie once a week, it it isn’t the same thing. I do feel bad for feeling like I complain a lot and for constantly asking when we are going to have the conversation about how long she is going to be with us.
I think everyone in this type of situation is going to have some sort of guilt over the negative feelings we have, but we have to realize that it is okay and sometimes we need to get out of the situation for everyone’s sake. Just writing this has made me realize that I should probably talk to my husband about getting her out of the house during the week so I can have my own space for just a little bit.
I feel like I am just rambling here because of all the things that I think about that just stress me out about the whole thing.
I wish you luck and hope you know, I am right there, mentally screaming with you.
Look for this thread:
https://www.agingcare.com/questions/mother-in-law-lied-to-us-to-move-in-am-i-stuck-with-her-forever-now-446777.htm
Read all the answers and sub-answers. Learn from it.
The details vary from story to story. One common theme across most of the tales: The man of the house (son of MIL) can’t/won’t get the ball rolling.
Wife always has to be the bad guy.
So be it. Rehearse your speech and deliver it. Soon.
No matter what, do not feel guilty for having these feelings.
I underestimated the stress and strains of having my father in law move in with us four months ago.
All the reasons you listed are exactly what made me want to scream every day!!!
I gave up trying to get him to use a plate when eating snacks(which he did throughout the day)and tossing his dog(ugh, not dog people, have two cats)pieces of whatever he was chomping on.
I tried to reset everyday and start fresh, but by mid morning I was worn down.
My husband and 20 year college student daughter, were busy with long days at work and school, so it was me, 24/7 cleaning and cooking and taking care of a dog that I didn’t want.
Although my FIL was constantly thanking me and appreciated everything I did for him, I became bitter and resentful.
We moved him into an assisted living home just yesterday. The dog is still with us(for now). We will take her over for visits.
He is 93 and going strong.
His doctor diagnosed him with onset demensia, but says he could be at the same stage for another 8-10 years.
I do not feel guilty or ashamed, I know I did my best to take care of him.
I literally, put “my life” on hold for the past 4 months. I’m ready to go back to work (had quit my job to stay home and take care of him after he fell in his home)
If anyone were to ask my opinion about moving an elderly parent in with them, I would stress the importance of having a back up plan!
Best of luck to you, my heart goes out to you and your family.
Bless your heart! And after having been on this site, I believe for over a year now, if ever I were to think about quitting my job to stay home and be the caregiver, I will never, ever do that, especially after reading the experiences and advice on here.
I absolutely 99% of the time loved being as much of a stay-at-home mom when my children were growing up as I could. However, as much as some liken aging adults to having "another kid" at home, it totally is not. An aging adult is its own tenuous category; they are most definitely not children.... not in size, not in how you can try to manage them, etc.
Mom who is 93 is the epitome of good health, albeit her high blood pressure which recently each afternoon skyrocketed after a recent UTI and completion of the antibiotic (all cleared up now; we checked). So after taking her to the excellent ARNP last week and with her suggestion/encouragement of home health and PT/OT for a bit, it was begun this weekend. I already feel a bit of weight lifted just to have other eyes in the house even for a bit periodically. Had we left the decision up to Mom, "no, I don't want anyone in the house (my house :) which I share with her" and it was a definite no yesterday when it was said the PT eval would be today, and again this morning, she comes in with her calendar and says "It's Sunday, the PT can't be coming here today". I looked at her blankly and said, yes, he is, between 11 and 11:30. So she turned around and went back to her room to dress :) Yay! A win for the daughter!!
Than both of you should sit dad down and explain your decision to him. make him understand you are no deserting him and will always be there for him but with the baby coming you can not handle everything as you have in the past three years. I would get him involved into looking for a senior care with people his age. go over his finances and see what he can afford. take him with you to check out places .
dad needs to understand you are one person and cant handle every thing. tell him all love him dearly and will be there in person and by phone as much as you can. He needs to know he is not being thrown out and neglected .
the other option is to keep it as is and but by reading your story it doesn't sound like that would be a good thing for the future of your health and/or the future of your family.
dads going to have to learn that he raised his family and its time for you to raise yours...
good luck......