I am an only child and take care of parents in my home. Mother has mobility issues. I have written before about her complaints and my reaction to them. I dread going into her room in the morning because she always greets me with a list of complaints. I have tried not to engage with her. My first reaction is to feel guilty and to try to explain or fix whatever was wrong. Big mistake! For example this morning she said there was no water on the table. I pointed out that there is a full container of water on her table, but she says she can't use that container because it is not the right color. This is a new development because I didn't know that a container's color mattered. When I offer a solution she says I am complaining. She talks down to me and uses my full given name rather than my nickname. Then she says I should try to lie in her bed and see how I like it. To me it sounds like she is wishing me ill. I feel that she doesn't like me since I have been involved with her care. We had a fairly good relationship before her illness. She has not been diagnosed with dementia but I think with all the medication that she takes her personality has certainly changed. How can I protect myself from taking everything she says so personally. I know it is affecting my health and I am beginning to not like being around her.
As for demstress:
It is very hard not to respond to the complaints.
It is very painful to take the insults and guilt laid upon us.
It is very hurtful to do your best and deal with criticism of what you do.
It really doesn't matter so much where this behavior is coming from. If it is dementia, it would be good for you to know only so that you can educate yourself about what to expect as it progresses. Bottom line is knowing WHY will not really help you get past her scathing criticisms. YOU know that you are doing your best to make life comfortable for your parents. If she does not seem pleased, it is more likely just her, not something you are doing wrong. You more than likely will not be able to change her behavior, so this is where you have to learn how to let the guilt, complaints and criticism slide off and work on keeping your composure no matter what she says. If she has a legitimate complaint, say the "right" colored water pitcher is empty - apologize for the oversight and correct the situation (my guess is you will not have much of anything to apologize for, but ONLY for legitimate complaints!!)
It will take a bit of effort on your part and a lot of practice, but it will get easier each time, even just a little bit each time, if you work on de-stressing! Once in a while you will slip and have these feelings again, but like a diet, don't let a slide make you give up!! Sometimes no response is the best response. Sometimes a neutral response is best (aka don't accept any blame, just make a matter-of-fact statement that you will get to whatever she's demanding. No time frame given.) I did like several responses others made, regarding the color of the pitcher (clear is one, or if you're really thirsty, you have water there is a pitcher right there!) and either lying in the bed or suggesting a NH bed when she makes that comment is better! However, those last two are rather snide, and probably should be avoided, but it did make me smile! Perhaps what might work best is to excuse yourself, you forgot something, you'll be back in a few minutes. Then leave the room and let her sit for a bit and dwell on it. Have a nice cup of tea and when you feel composed again, try a restart. If she is still cranky, let her crank away. Tune it out (it isn't easy, but it can be done!!!) Do what you have to do then leave the room again. If you continue to leave when she cranks, she should eventually get the idea that she'll be alone if she keeps it up. Even if it does not work for her, it WILL remove you from the negativity. All the while, remind yourself that none of this is NOT your fault, you ARE doing an amazing job taking care of two adults and like Isabelle2012 said: "Guilt should only be felt when you've actually done something that you know is wrong - not when someone SAYS you're guilty just because they didn't get their way." Deep breath and let that guilt slide away!!
Don't let the "Don't Bee" ruin your day or life!
It's practically impossible, in the beginning, to NOT CARE what parents think or say. But that's exactly what you have to do. Just don't have her opinion matter.
Weird doing that with your Mom, huh? But, at this point, it's more detrimental for you to answer her.
Don't explain, justify or question her. Of course, if she has a question you can answer it, but the fact that she seems to want to engage you in a dominant-mother put-down discussion, should not be allowed to happen.
You need to find a way not to respond (walking out, changing subject, shrugging shoulders with a "hmmmmm", whatever you need to do to NOT be sucked in to her demeaning conversation.
You've also got to not CARE how she feels about you or your family. DON'T respond to statements. Any statement to make you feel bad should be ignored because it's not healthy.
My son and I would fight years ago and I explained it to my therapist. She said, "You can't have an argument with only one person talking. DON'T take the bait."
It was really hard to not just jump right in, but, with practice, it can be done.
It feels like we are ignoring our moms but we are actually ignoring her bad behavior.
The last thing is you've got to get over the guilt. It's a mighty tool that lots of narcissists use to get what they want. You are providing a wonderful life for your folks. There is no reason guilt should be part of your feelings. You have done nothing wrong.
Please start practicing the new responses so you can reap the benefits sooner rather than later.
An added benefit is that it will put Mom in her place and give you a sense of strength and well being.
I'm an only child too and my folks did everything they could to put me down (you're fat, your hair looks bad, you didn't get straight A's like your friend Patty, etc.). Mother was a sales lady and dad was a TV repair man. Both were alcoholics but more or less functioning day to day.
I moved out at 18 and became a nurse without their help, and decided that I didn't give a rats tail what either one of them thought or said. I loved them but I saw how they played the game to make me feel "less" of what they were. I just adopted a philosophy that I WAS somebody and they could say what they wanted. I knew the truth.
Sorry to be so long winded. I just hate to see hard working, self sacrificing carers being berated by their own folks who are profiting by your hard work.
You're worth so much more.
You said that "with all the medication that she takes her personality has certainly changed." I would certainly be suspicious of how the meds are affecting her mind if she was different before she was taking them. Meds, especially multiple meds interacting, can surely affect a person's personality. If it is meds or dementia, it's not really your mom saying the hurtful stuff, it's the meds or her confusion. Soooooo hard to make that distinction and not be personally affected; just takes practice and constant reminding yourself it's not really her saying it, and that she doesn't really have full control over her own feelings or words; if indeed she does not.........Bless you and I pray wisdom to discern the root of the problem here, so you can know how to deal with it!
But, there have always been arguments along the way growing up into adulthood, which ended in a few days of not speaking (phone) and then one of us would call and start speaking again. No resolution, just talking as if nothing was wrong. But it was always the undertone, that Mom was right, about everything. I can remember my dad walking out of the room when he and mom had an argument, and I feel the same. I do not like confrontation, but now she is in my house which I try to share but she does all of these underhanded, sneaky snide things around ME only. She walks by me from the living room to kitchen for example and whispers some snide remark under her breath. Yet at other times, because she is still in really good health for 93, we will go out to dinner and have a really good time. But at home, she wants my attention whenever I am not working. She wants us all sitting down for dinner at the same time and if I'm working late on my computer, I may go off to my office to eat and work.
As far as POA, I will tuck those ideas somewhere in my brain right now and hold onto them because maybe in the future, I may need to do that. But for now, we went to an attorney maybe 7 months ago to get her will updated and all the POA/Living Will /Will. documents updated and talked to an elder care attorney about that and her house and car. Mom is not rich but she does own her house and car and some money in the bank. I would like to see her sell the house and car and stay here with me.... for awhile.... and if things are more difficult than we can manage, then look at an ALF. But that house is the one she has had for about 55 years and her things mean a lot to her. Actually all of that mean more to her than her family. I even thought about her getting a nearby senior apartment and be able to bring a bunch of her things with her. But we have a lot more discussion to do first. What I don't want to see happen is her going back to living in her home (3 hours away) because there is no support system there for her, no friends, no family... it would be a case of waiting for an accident to happen and hopefully she would press the button on her medical alert around her neck to get help...... right now, we are in a wait and see, and soon to talk about things.... again.
The sense of panic you get when you believe that the anger, distress, frustration, pain, dissatisfaction being shown by your loved one are somehow your fault or your responsibility to put right seems to me to be symptomatic of a poor relationship. That's the point.
And Myownlife, if you really feel like that about your mother, don't accept POA. Your much younger adult daughter might be better placed to manage it, for example; or, if that's not an acceptable idea, perhaps you'd better "arm's length" it through a professional service.
I can see the day coming where I as POA will have to push to sell her house and car in a town 3 hours away, because she is not suitable to be living by herself, and I can no longer go over there when she is "sick" or needs to go to the doctor or hospital or go get groceries. And she will be with me as long as possible and finally at some point into an ALF. I will have to be the "bad guy" because I am the only one.
It was my experience that caregiver gets "the dirty work" and so "the complaining that comes along with it." My late mother was as sweet as pie to anyone coming in to visit. I was called "Hitler" by my own mother because I had to instruct her to take her meds, eat, bathe, etc.
Great advice when I was taking care of my dad. It saved a lot of arguments.
Your mother is not happy (big surprise) and angry at the world - and sadly, you are "the world" that has to take the brunt of things.
You could try diverting her with, "I'm on it and will change it as soon as I can" - chances are, she'll forget her nitpicking with a new complaint and you just say it again.
I'm praying for your sanity - heck, I pray for mine daily.
I don’t know anything else to do but eep praying I can handle it.
Really??!
Wow. A little harsh. I get what is behind what was said there, but the reality is it IS a very common response. While not entirely rational - particularly as seen through the lens of understanding dementia - that is unfortunately the pitfall of caregiving for a family member or anyone you have had a long-term relationship with.
A little more compassion and a little less judgment here, folks. Please.
Demstress, you should definitely look into the (ir)rationality aspect and coach yourself on some self-preservation techniques and responses. But considering the load you are carrying, I don't think you need to take time out to analyze your past relationship with your mom. Not really going to help the current situation because that mom is not really the one you are caring for now.
FWIW, I've been doing this for over 5 years and I still have occasional bad days when I take things waaaaay too personally. I know better, but I am human - and this vocation can be heart-breaking and soul-crushing.
Best wishes, hugs, and prayers for you - and everyone on this site!
Is it at all possible to find her an assisted living or nursing home where she’ll be cared for and you get some peace?
Repeatedly on this site it’s explained how this happens financially.
Also have her assessed for mental competency. First and foremost do this. You’ll know where you all stand.
And don’t dwell on conversations nor overthink WHY she acts that way. She’s destroying your sanity and the only one who can save you is you.
Become educated on all the different solutions to both your problems. She needs a new home.
I go through things with Mom where she will give me a hard time about doing something -- like trying to change her clothes. She gets mad, holds on to her shirt with a strength I didn't know she had (even when she can't walk). I can't even pry her fingers off of it. I look her in the eye and tell her that I am trying to help her. It doesn't work, though. I end up getting frustrated; and like last night, let her sleep in her sweatshirt and depends. It would be nice if she'd just appreciated my helping her. But, she doesn't fully understand (or maybe she does... I don't know). I can say that my mom, while I didn't see it too often growing up, she did have a way about her where she would tell someone to "go scratch" (as she used to say -- I was never sure what that meant :-)). So, I am thinking this is part of her personality. I fear, though, that we will end up not liking each other...
After my stepfather passed away in 2011 and because of my own circumstances, I moved to the same city as my mom. That’s when I noticed the phobias and paranoia. For instance, she would not take her meds if she thought they were “old” - not expired, but more than a week sitting on her counter or in her bathroom cabinet. It could be anything - shampoo or body lotion. Same with food. I could not get her to understand expiration dates. It didn’t change her mind. Then I noticed she was spending all her money, which she had little of. She went every single day and got fast food for lunch. She would go to the store and buy two things and two days later do the same thing. She would write a check for cash of $100, and could/would not tell me what it was for. This, of course, was causing a shortage in her bank account where she would have to pay her bills late. I took over paying her bills (online), but she fought having me on her bank account.
I finally put my foot down and retained a POA, took away her checkbook and debit card and had my name added to her checking account.
Her health deteriorated by her own hand and she started falling. I had meals delivered to her so she would have at least one good meal a day. They would pile up in the fridge because she “got tired of them”. They would end up being thrown away, most likely because after two days they were “old”. So I stopped that service so someone else could benefit.
Mom has dementia, but I am convinced has some psychological issues as well. She would rather lie than tell the truth. She cuts up her clothes. Instead of asking me to get her something else or hem up her pants, she will just cut them off. Or if something is dirty, she will cut up a perfectly good blouse to sleep in. We have now hidden all the scissors in the house and the sharp knives.
She refuses to bathe herself and when I force her to have me do it, she complains the whole time. It’s like she has an aversion to water. God forbid I put lotion on her. She goes to her room and wipes it off.
At this point, my mom is still fairly mobile with a walker. When she doesn’t want to do something - like it’s bath day - she pretends to be sick or not feel well. It happens every. single. time. Sometimes I call her bluff and tell her that I need to take her to the doctor if she is sick all the time. Then she says “I’m not going to the doctor!”
She lives with my husband and me now and just after four months of this (and much more) I’m about to pull my hair out. I do the minimum to take care of her: feed and clothe and provide a place to stay. Other than that, I don’t like my mother anymore and it’s hard for me to be around her for more than 5 minutes.