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My father is 92 , getting very frail (partly due to never getting out of his chair) and consequently has serious mobility issues. He also has quite an inflamed bottom which sometimes breaks out.
He constantly moans ‘oh dear’ and ‘oh no’ and also wakes me all through the night (often when I go to check him he’s already asleep)
I am stuck with him mostly 24/7 apart from a 30 minute carer visit.
I am sure you can imagine what a negative environment it is to constantly be around and hear this all day long.
Any suggestions?

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I still would have him retested, Julie. It takes a few days for the results to come back. Culture and sensitivities need to be done to determine the best antibiotic to use. If the doctor got back to you as soon as you dropped off the urine specimen he probably just did a dip stick. I would call and find out if further testing was done and tell him he still has symptoms. I have been dealing with my moms UTI's for years and it is not pleasant to say the least. Personality changes, irritableness, loss of appetite, poor fluid intact, nausea and vomiting and bladder pain. UTI's can lead to sepsis if not treated promptly.
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JulieKac Jun 2021
His urine colour is much improved (tomorrow is the last day of the antibiotics)
I will contact the doctor again on Monday and ask to get him retested ( he should have got back to me with the results of the first sample really.) He is eating quite well and has been drinking liquids (albeit with a bit of complaining) so that’s good. No nausea, vomiting or pain.
He was in hospital last year with a very bad UTI ( admitted for shortness of breath, but actually it was a UTI and prostate problem.)
That time he became quite delirious and was much worse so I am hoping we caught the UTI earlier.
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Julie, who is sending the carers for a 30-minute call and what does it say in their care plan? I'm not clear what they're supposed to be doing to help.

I think you're living on the South Coast, aren't you? - have I got that right? I remember your posting quite some time back.
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JulieKac Jun 2021
Hi Countrymouse,
The carers who come for the half hour visit were initiated by social services via Alina Healthcare after my Father came out of hospital several years ago. They used to come three times a week but at that time he was managing to wash and dress himself. According to their assessment that’s all the care we/he needs and actually he pays the total cost himself. There is a cap of £500 per month after which they would pay, but after completing a lengthy re-assessment (by phone due to COVID) they decided that 30 minutes daily care was sufficient. The 30 min care plan is to wash and dress him. Obviously, if I wasn’t here, he would need a lot more care. The only thing he can do for himself is (just about) get to the toilet and back with a zimmerframe and. at night he has a commode. His mobility is very poor and he is reluctant to move around for fear of falling.
Yes, I am on the south coast near Brighton.
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Wow, your profile says that you are in England to care for your dad. Your husband is in Turkey. That alone is heartbreaking.

Your dad needs 24/7 care. You are exhausted! How long do you feel that you can maintain this situation. Obviously, you feel responsible for your dad and care deeply but it does seem to be a burden for you. It’s a huge responsibility to care for an elderly parent.

Many of us on this forum are currently caregivers or have cared for our family members that are now deceased.

Have you discussed this situation with your father? Is he willing to enter a care home? Or at least hire more help at his home so you can rest?

How does your husband feel about this situation? You must miss each other terribly.

I am so sorry that you are struggling with this situation. I hope that you find a viable solution soon. Wishing you peace as you navigate your way through this difficult time in your life.
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A 30 minute break is obviously not enough. You need more than that. I'm not sure how things are in England, but if nursing homes there offer respite care stays you should put him in a facility for 2 weeks and go see your family.

How is he waking you up in the night?

Have you asked him to stop with the constant moaning? Yikes. That'd drive me batty! Put on some ear phones and have nice music playing to drown out some of the excess noise but low enough you can hear things you should hear.

Can you put some distance between the two of you in the home so you can't hear him belly aching all day?

Is he on pain and not being properly medicated for it or is the moaning just a bad habit?
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JulieKac Jun 2021
Visiting my family isn’t an option right now due to COVID I cannot travel to Turkey.
Also due to COVID getting my Father into a care home for respite care for a couple of weeks isn’t possible either.
You asked how he is waking me up in the night. He shouts out and moans a lot and when I check him he has usually gone back to sleep or he has just been moaning after getting up to use the commode next to his bed. He is quite deaf so doesn’t realise how loud and disturbing he is to me.
Yes, you are right, it is driving me batty. I can sit in my room to reduce hearing the constant ‘oh dears’ but it’s still there!!!🤪
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I would advice placing him in decent facility. It seems caring for him is too much for you and you are getting stressed out. Your dad needs more professional care. He is at risk for decubitus ulcers if not already due to him sitting all day, pain , inflammation and breakout. He must be in lots of pain moaning off and on. I would suggest do this as soon as possible for the benefit of your father. Call his doctor and explain his situation.
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JulieKac Jun 2021
It is t that easy to get him into a facility unless he paid for it privately and he just doesn’t have the funds. Actually, he isn’t in pain. The constant moaning is just a habit he has got into. If you ask what’s wrong, he says ‘nothing.’ He is also depressed and doesn’t enjoy anything. At the moment he has a UTI and I am trying to get him to drink more liquids ( the reason for him getting the UTI in the first place.)
The pressure sores are already being monitored by the carer and if the skin breaks we contact the nurse to check him. He has a pressure mattress on his bed and special cushion on his chair.
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Hi Julie,
I would get him retested. On occasion doctors may give an antibiotic without waiting for the results but usually is rare these days.
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JulieKac Jun 2021
I agree this is a good idea. I contacted the doctor because the colour of his urine was very dark and took a sample to the surgery.
The doctor phoned my Father 10 minutes after I left the surgery and said he had a UTI and was sending over a prescription. So, does it mean it was randomly prescribed? Tomorrow will be the last day of a five day course of Trimethoprim.
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Hi Julie,
So glad he is doing better. I usually get my mom retested after a round of antibiotics 7 days after finishing antibiotics. We try to keep on top of things.
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JulieKac Jun 2021
Thanks for your advice and empathy.
I really appreciate it 🙏🏼
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Have you already been to this website? -

https://www.brighton-hove.gov.uk/adult-social-care/care-and-support-adults/support-carers

Have you at least had a carer's assessment?
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JulieKac Jun 2021
Hi Countrymouse
Yes, I know that website. There’s not much there that helps my situation though. Actually we come under East Sussex social care and they have a similar site.
I have got a Carers Card so I get 20% off bus travel.
The carried out a Carer’s Assessment over the phone.
After this they said they could give me a one-off payment of £250 for my mental health needs! They said that due to COVID and cutbacks on social care, they couldn’t offer me any other support.
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Great. 20% off bus travel that you can't use 'cos you can't go out. Which is kind of the point.

When they did the reassessment, did they speak to both of you or only to him?

"Risk of carer breakdown" is one factor which appears on our round information as a reason for our visiting clients, and I happen to know that your NHS Trust and your local authority do have crisis support teams (because they're currently advertising the same job that I do in a different county). Demand is high and resources are scarce, but when did you last have any contact with anyone in adult social care? - because it's reasonable for you to push for more respite hours or a respite break, and it's reasonable to keep asking. What do they actually do in that half hour visit at the moment?

One caveat, though - things are bedlam out there, even very dependent families are being let down to the extent that I just don't understand what is going on. People are leaving our service, but they're also leaving a lot of the private providers locally; and if the agencies and the local authorities simply don't have the workforce then they can't send the carers. It's all going a bit pear-shaped.

Have you joined CarersUK? They'll certainly have a support group in your area.

PS Are the District Nurses visiting to check his skin?
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JulieKac Jun 2021
When they did the assessment, they spoke mainly to me.

If his skin gets broken at all, the carer requests a visit from the district nurse. At the moment I think it’s borderline.

I’m not sure if I am a member of CarersUK. Will Check that out.
So you think I should be pushing to try and get some respite? Talking to East Sussex social services, I got the impression that unless they think you are having a breakdown, there is not much hope of support. How do you suggest I go about this?
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Thanks for your reply.
At the moment there is not much I can do to make things easier. I cannot go back to Turkey right now anyway. My husband understands the situation but of course it’s difficult. He isn’t as isolated as me and he always says ‘he’s your Dad, you have to keep going.’ Although I realise that, nobody really understands what it is like to be around someone almost 24/7. Yes, I can get out for a few hours but I always have him at the back of my mind ( ie Did he drink/eat anything etc?) At the moment with a UTI he should be drinking a lot more to flush the infection away but I am constantly like the bad cop reminding him to drink more water, tea, anything!!!
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earlybird Jun 2021
Hello Julie,
Is your father being treated with antibiotics for the UTI? My mother gets them frequently and sometimes the medication does not work and she still has symptoms. The urologist repeats her culture and places her on another she is sensitive to which usually clears the infection.
What did the nurse suggest in preventing breakdown? Did they recommend a wound specialist? Ulcers can happen very quicky and are difficult to heal. I would also speak to his doctor to order a consult with a wound specialist. He should not be sitting in his chair all day. Too much pressure on his butt and coccyx.
I understand completely what it is like to be around someone 24/7. I have been caring for my mother for 22 years. Caregiving is not for everyone and that is ok. There must be Elder services in your country that can assist you with planning.
Did your father see a doctor for his depression? He might need an antidepressant. If he has not seen someone, I would make an appointment asap.
My mother moans sometimes and it is usually for a good reason, a UTI, pain or she needs changing. I would investigate further about his moaning. Mention it to his doctor. The best to you and your father. Hope you find a good solution soon. Take care.
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