I am asking for advice on what do. My husband is, seemingly, in denial about the late stage of dementia his Mom is in. She has lived with us for the past 6 years and has deteriorated. Currently she has been stepping over “holes” when she walks and is unsteady - she seems very uncomfortable about what is in front of her and it takes me and husband a long time getting her to go upstairs with us to her bedroom. She is also perfectly happy conversing with people whom are not actually there. When me or my husband tries to communicate with her, she is startled and doesn’t want to be touched. She is able to understand about eating. I have to touch the food to her mouth and then she will open her mouth.
So, my husband treats her like she understands everything and that she knows who he is. When, in fact, she doesn’t. He almost insists that we bathe her regularly; but, my mother in law is scared and doesn’t understand. My husband also has health issues and frequently gets tired being with her. This is scary! He told me that passed out a couple times while trying to get her off the floor. (She was sleepy and didn’t want to get up) I have spoken to my husband and told him that we need to stop... just wash her with wipes. He doesn’t want to listen. He is in denial and part of me understands completely. But, then he tries to find ways of bringing her with us for a vacation! I have said that it is best to have someone else stay with his Mom. We need time alone... at times I feel unimportant compared to his Mom. He seems to always put her first. Anyway.. he frequently says that we will have 15 more years with her. I, sadly, don’t think so. Sometimes it feels as if it will be within the next 2 years - or even less.
Does anyone have suggestions of what I can do? Should I try and keep talking to him? Or just let him figure it out on his own? Thank you for any input.
Has he seen a cardiologist?
What is your plan if he predeceases his mother?
I think I would insist on HIM getting a complete workup, make sure that you are there (or send the doc a note beforehand) to explain the stress he is under with his mom.
Perhaps the doctor will be a better explainer if why he needs to take care of his own health.
First, why was you MIL on the floor? Because she was sleepy? It is not normal for a person to sleep on the floor or suddenly have to go to sleep and sink to the floor. Did she fall? Did she sink to the floor because one of the "holes" scared her? (More details on the "holes" later.). Were her legs too weak to carry her? Why she is falling should be discussed with her doctor ASAP. Falls are one of the top causes of death for seniors. They may survive the fall, but many seniors do not make it through recovery.
Second, the "holes" that your MIL sees are part of her disease. Depth perception is affected as Alzheimer's destroys the brain. Bathtubs are a bottomless pit. Area rugs are a bottomless pit. Doormats are notorious bottomless pits. Stepping from a light rug onto a darker floor is stepping off of a cliff. If there is anyway you can remove rugs and mats in your home and contrasting floor colors, it will make your home much safer and make you MIL feel safer.
Third, that your husband has passed out a couple of times caring for her says he is not qualified to be a caregiver as he is unable to provide a safe environment for your MIL He could fall on her and could be unresponsive long enough that she could injure herself or elope (leave the house unattended).
Fourth, that your husband has passed out a couple of times says that he has a medical condition that needs to be investigated promptly. Altered mental status (passing out) has a variety of causes from minor to serious A few examples are electrolyte imbalance, coronary issues, kidney infection, stroke, seizure, environmental and syncope,
You and your husband have been caring for her for a long time and I imagine that you are feeling more and more helpless. This is his Mommy and your husband is seeing his mother gradually lose herself and he knows her death is coming. He feels powerless, so he is doing everything he can to keep her "alive." I put alive in quotes because it is not just the physical act of living, but the memories of who she is. A very loving and empathetic conversation with him solely about the mother he is losing might help.
You are a good wife and DIL and you are right to want time for yourself and your husband. The caregiver has to take care of oneself first (emotionally and physically) in order to give the family member the care they need. A break from the care giving, whether it be a cup of coffee in the park or a vacation, are absolute necessities for your well-being and your husband's well-being.. Take your husband and your MIL to their respective doctors and find out what is causing their problems. See if you can, find a doctor that specializes in dementia as most primary care doctors are not well versed in the subject. (Where I live there is a four-month waiting list to get into the local center on aging and dementia.) When you know your husband's and you MIL's medical conditions, you can plan according to their abilities. Keep an open mind about possible outcomes and remember that you come first. You can't help your loved ones if you don't take care of yourself first. Best wishes.
I honestly don't know what to tell you. You may not have 15 more years with MIL, but you may have 5, and I think it likely that one or both of you won't survive it at this point.
If it were me, quite honestly I would tell my husband that I believe he is in denial, that I personally cannot go on in this care, and that I refuse to stay and watch him die doing it. I would tell him that sadly I need now to leave him in the care of his Mom, as he insists to do it. That I hope to move to studio or room nearby and will attempt to do some minimal help of shopping, appointments, etc for them, but without placement for Mom being a consideration, that's the best I can do.
I would not kill myself. I would not stay helplessly watching my husband kill himself. If he chose to do it it would be without an audience, and without my help.
How old is your husband and how likely is it with his health issues that you might find yourself a solo caregiver to two people? Would that be OK with you?
Id say I'm burned out. Its up to you to do it. Or get help but your done. It is a lot to care for someone 24/7. Id make him do it. She is his mom. Id tell him your in denial, so ill let you deal with it.
Id go on vacation with a friend. Leave those 2 behind. I wouldn't do it. You have to make him see that it is too much for you.
Your going to have to make him do it to see how hard it is. Just say your burned out. If he's too tired too bad. So are you. There is nothing wrong with getting help and having a break. You deserve it. Doesnt mean you don't love her, just means your burned out. Good luck
Were I you, this is the conversation I would have with my husband:
"My love - you seem to be in denial on how bad your mom is doing. And I understand that the thought of our parents becoming sick, declining and dying can be terrifying. I also understand your need to take care of her, and I will *try* to support you to the best of my ability.
BUT - I have noticed some issues with YOUR health that I find very scary, and my first priority is YOU. So this is what I think we need to do:
1st and foremost - we need to get YOU to a doctor for a complete physical. That you have *almost* passed out while trying to pick your mom off the floor really scares me. And it should scare you too - how well do you think mom would fare if you *completely* pass out while trying to pick up mom, and you drop her/fall on top of her? We have to know together, exactly how much care we are PHYSICALLY able to give your mom. If, for instance, you are having heart issues, you might end up being limited by your doctor as to how much you can physically do. We need to know definitively how physically capable we are to take care of mom before we get in any deeper in caregiving.
2nd: While we continue to take care of mom in our home, I need to have some alone time with you. If that makes me seem selfish, then so be it - I am ok being called selfish. But I need to have time with you that is solely our own, just you and me. I need to know that I am your first priority, just as you are mine. And I need to see this by way of your actions, NOT just your words. So while we are taking care of your mom, we will make it a priority to carve out "alone" time - be it vacations, date nights, etc. But for me to stay in this role of caregiver, I need my needs to be met, too.
3rd: and possibly the hardest - I need you to recognize that there will come a time when taking care of mom in our home will simply not be sustainable. I don't know when that will be, but we both need to recognize that fact. I think we BOTH need to start going to her doctor appointments, and start to come up with a plan going forward, so we are not pole-axed when the day comes that she begins to wander out of the house; that she becomes violent with one or both of us; when she begins to refuse to eat/drink/take her meds, etc. or any of the other terrible things that dementia does to people. If we start to plan now, it will be so much easier for everyone - and I include mom in this - once the time comes."
If you feel what I wrote will help, by all means feel free to use it - or change it how you see fit. You can even print it out for him to read - sometimes it's easier for some people to communicate that way.
If your husband remains in denial, and you're not willing/able to leave, then unfortunately it's going to fall onto your shoulders to plan for the future. I suggest you educate yourself as much as you can, so when the time does come you are making your decisions from a place of being informed rather than a place of desperation.
Good luck, I hope your husband will listen and come around to see you want what's best for both him and his mom!