My mom is on Aricept and Namenda for uncomplicated senile dementia and has been on these two drugs for 12 years. My mom is 92. Overall her health is good. A small dose of Lopressor for the heart. Had a cardiologist appointment went well he does not want to see her for 6 months. My mom's mind is good except for vision and hearing. The facility wants to put her in Memory Care. I do not feel this is appropriate for her at this time. My mom has even stated if I go there I may as well die.
I think this facility is doing this for financial reasons. I do have a Neurologist appointment for her coming up. In the meantime, the facility wants to get a Speech therapist to do a cognitive test. I have looked at the test of questions. With her macular degeneration, she wouldn't pass. She is out of sight but not out of mind.
I am a 34+ BSN nurse. I am a case manager in the hospital. I think this is not right. Has anybody ever dealt with issues like this with a parent?
Is she needing more help that they have not informed you about?
Has she gotten lost within the facility or needed help navigating around the facility that they have not mentioned?
Is she needing more help with ADL's?
I don't think, and I am not a professional but,... a Speech Therapist would be qualified to give a cognitive test. That would be a job for a Neurologist or a Neuropsychologist. And a good one would take into consideration the vision problems and hearing problems that your mom has.
You do mention in your profile that your mom has Alzheimer's / Dementia. If that is an actual diagnosis I doubt another cognitive test would reveal any more.
With the diagnosis of Alzheimer's/Dementia moving her to MC is a good option. It is possible that he is needing more help and with AL they may not do 2 person transfer, or they may not be able to use equipment where in MC they might be able to use equipment and have the ability to do 2 person transfers.
I would request a meeting and have them detail exactly why they are suggesting this transfer.
But one very important thing I hadn’t thought about that they (ST) were keyed in to notice was “code switching” on language and for having allowances on testing done to accommodate it.
That for those, like my mom, who’s first language was not English & fluently bilingual her whole 99 yr life, is that they tend to revert back to the 1st language as their dementia increases. So there are processing issues in answering questions in English whether spoken or written. If the tester is not aware of the elders background, they can take the hesitation or silence as not being cognitive, not understanding. Doing a mini mental & saying “Table, chair, pencil” when the elder instinctively and initially thinks “la mesa, la silla, el lapiz”, flat requires extra time to code switch. If this at all could be your parent, try to see if this at all could be happening for their cognition.
If she has been on medication for dementia for over a decade she either never progressed beyond MCI (and many people don't) or she is well beyond the early stages of dementia, but I agree with Grandma1954 that I would want to know exactly what they are seeing as causing problems in her current placement and why they feel she needs memory care.
But you say she has been taking meds for 12 years for uncomplicated senile dementia. This means she has cognitive problems.
This is how I look at MC based on the AL/MC in my small area. They are a step up from an AL. This is for people who really need more care and supervision. Those who are really into Dementia. The person is now in lockdown and there may be a better ratio of aides to residents. A RN is in charge but mostly aides doing the care. Is it the RN that is telling u Mom needs a Speech Therapist?
Seems Mom knows what is going on. I would first ask why they think she needs to be changed over. (I too think money could be involved) Has she become aggressive. Does she need to be watched more? My Moms AL did everything for her but they did not separate their residents. They bathed and dressed her. Changed her. Made sure she got to meals. She could still feed herself. She used a walker. Tell them Mom has a appt with her Neurologist and that you will talk over their concerns with him/her. You will see if he/she feels a Speech Therapist is needed.
I don't see my mom everyday. Not even every week. Maybe once a month, and I am VERY aware of her sliding down, so to speak. YB, with whom she lives, doesn't notice and therefore doesn't address any issues.
Fair to him, there isn't much, if anything he could do differently. I wish he would take her to be checked out when she falls (which she is doing more frequently) but he refuses.
Looking at your mom with fresh eyes---no pre-conceived ideas about what you already know--and maybe you'll have an AHA moment when you see she does need a step up in care. Or maybe you'll be more convinced that she doesn't.
When I told Dad's private caregiver that the Staff wanted Dad to move, she agreed. She said my Dad was getting confused. I told Dad he was moving to another section where the apartment will be much smaller [instead of a suite, he will have one room w/bath], and I did a therapeutic fib by saying the monthly rent would be a lot cheaper. He liked hearing that !! We joked about his "college dorm room". Now he had a village looking after him,
Dad was now in a safer environment as the Staff said they caught Dad trying to leave the building at night, but now in Memory Care, the elevator shuts down [unless one has a code] so the residents don't start to wander. Even the building front door is locked earlier then at the other building [coded]. During the day, there is a Staff member at the front desk making sure a resident doesn't leave by themselves.
My Mom fell in AL and as a result they made her go to MC. I had my own caregivers there 10 hours a day and AL and MC were like night and day. And not in a good way.
When Mom was in AL she ate in the Dining room and could go to the exercise classes. She was stimulated. Laughed and talked with others. She didn’t make a lot of sense but people enjoyed her.
I did get the snobby old people who said she didn’t belong in AL and she probably didn’t, but she thrived there. Once they moved her, if I didn’t have my own people there, she would have died. They basically did nothing with them. Sat them all in one area in front of a TV.
My Mom also had macular degeneration in both eyes. She got the shots to keep it from getting worse but eventually it stabilized and we quit the shots.
I ended up getting 24 care and moved my Mom home. It was more stressful and difficult for me, but cheaper and better for her. If I could have left her in AL, I might have stayed but once I saw how they operated in MC I knew I had to leave. There was less care in MC, but the cost was much higher.
You might ask them if you hired some private care for her during the day could you keep her in AL. That was how I was able to keep my Mom in AL until the fall. Keep in mind once the fall occurred, my Mom could no longer walk.
Overall, I agree with your Mom. From my experience she’s right. No one really knows what goes on in these places, but I did because I had people there 10 hours a day and it was eye opening.
My mother's place was often a hive of activity. They had special projects, brought in outside entertainment, depending on desire and ability they had outside activities/trips.
No, I wasn't there all day every day, but my visits were random days/hours, so they couldn't plan something to just pretend with me. When I did visit, it was usually for a good long time, so I could observe different staff and different times of day (mornings, afternoons, evenings.)
There are several others on this forum who are also very pleased with their MC facility.
I've always maintained that we who advocate need to CHECK the facilities as best we can (obviously the virus impact our ability to do that, but before and after, there's NO excuse not to thoroughly vet a place you plan to house a LO. As with my visits, make them random, hit various days and times, chat with others (residents, family members, maybe staff), use all FIVE senses in your "observations."
Clearly the place your mother was in was NOT one we would recommend. A few visits, different times of the day before the move would have made the situation clear, without needing to hire others for 10 hr/day on top of the higher cost of MC.
A speech therapist is not the right person to do cognition testing. That would be a neurologist. Advise the facility that you will discuss your mom's placement after receiving results from her neurologist. Be aware that medications for Alzheimer's type dementia work in the earlier stages but tend to not work in latter stages. That happened to my grandfather. He also had hearing and vision problems. Try hard to get her vision and hearing addressed since folks that lose those abilities decline faster.
Use those good nursing skills for your mom's best health care. You are her best advocate (coming from an RN with BSN too).
Stand your ground for your mom!
Remind management of the ADA act and "Residents' Rights" -
If all else fails, contact the ACLU because this is a civil rights issue.
OP would be better advised to keep her plan for see the neurologist, but get more information from the staff as to why they feel mom needs to move. What declines have they observed that OP might not see? Neither of my brothers could see/sense the change in mom (she was living in her own place at that time.) Sometimes they can pull up their socks and "appear" more normal for periods of time.
If OP can get more input from the staff, she can address these with the neurologist. If there's anything she can share here, it might help us make better informed suggestions/recommendations. Running off right away to complain isn't helping mom or really addressing the situation. Mom isn't being abused, They "want" mom to move, but they can't force it, so what's the rush to get APS, etc involved?
If the facility is trying to move her with insufficient cause, be shopping for another facility.
I can imagine that if she's been living in a facility for 12 years, it may be hard for you to see or perceive changes in her cognitive abilities. Memory Care is not a death sentence, it is a place where seniors go who cannot remember things and need a safe environment.
Every change is not necessarily money driven. Only you can tell (us) if this facility is honest or not-- she's lived there for 12 years so it would seem that you trust them.
With my mom, it was very evident that she was doing successively worse on the memory tests but that you couldn't necessarily tell, from the outside, that she was losing brain power.
Again, I don't understand equating Memory Care with " I will die ". Does she have a geriatrician? They can help you figure out next best steps.
Wishing you luck. All of these transitions are hard and fraught. They may be harder for us than for them.
Of course some (like this mother) think ANY change, NH, MC, etc is going to be the death of them. Despite having AL in her own plans, my mother refused to even consider one after dementia came calling - you'd think it was a dirt, snake-filled hovel the way she spat out the words!
Although tests might reveal some reduction in cognition, even that isn't what should be a deciding factor. Can't draw a clock? So what? Does drawing a clock have anything to do with being able to live somewhat independently? Nope. Those tests can be helpful, but some people can do just fine "independently" longer than others.
I think OP would be better served to:
1) get more detail from staff as to why they recommend the move
2) once you have input from #1, spend a whole day with her
Sometimes we don't see the changes that do lead one to need more supervision. We are not there all day every day, like the staff is. Spend several days, if possible, at different times. She may do find during your visits, chats, etc, but dealing with the stresses of everyday life, she may be exhibiting struggles with some activities which may indicate the need for more supervision.
My mother had both Macular Degeneration and hearing loss. I agree with another person, get her to wear the hearing aides as much as possible! Sadly my mother had already lost hearing in one ear (surgically correctable when detected, but she refused) and with dementia it was getting difficult to keep the batteries fresh AND get her to keep it in. The loss will accelerate and will also impact cognition. She started treatments for the MD, considered legally blind in the first eye. I helped her before and after the move to MC. With hearing loss, it was important to protect her eyesight. Treatment was continued 4x/year until she had a stroke. Between the wheelchair she was already in, dementia and then the stroke it would have been difficult to get through the whole process. I don't think the MD had any real impact on her dementia. The hearing loss likely played a part, but high BP, even treated with meds, for many years likely lead to her vascular dementia (never tested, but given condition, age and progression, this is the most likely.)
Get more input from staff - ask for details, times of day, etc and then observe for yourself. Spend some whole days with her. As others noted, it might be illuminating.
As for if/when MC is needed, do spend time checking the facility, even the one associated with her current AL. Just because the AL was great doesn't always transfer to the MC area.
Also, just "having" dementia doesn't mean someone is ready for the MC unit. MC is for people who have MEMORY issues. The answer and focus here should be on what does the staff see/know about mom and her ability to get through the day in AL. With that information, OP should spend a day, many WHOLE days with mom, to see for herself how well mom manages.
Even the testing isn't and shouldn't be the deciding factor. Tests can document decline, but if someone can take care of themselves with minimal assistance, despite mild dementia, some hearing loss and some eyesight loss, then they don't need MC.
FYI: My mother's eyesight in one eye was seriously impacted by MD (something like 20/200), but they never said anything about taking her license away. Blind? Hardly. No different than someone who has lost an eye. Doesn't make them ready for a rubber room, does it? Even my former MIL managed to keep her license after losing eyesight in one eye. LOSING the eyesight in that eye, not poor vision from MD.
Furthermore, a cognitive exam has little to do with vision and everything to do with memory questions; only at the end do they ask the person to draw a clock to see where their executive brain function is at, the rest of it is verbal. My mother has horrendous hearing & macular degeneration herself, has taken the MoCA cognition exam at least 10x and the first time she scored an 18 out of 30, declining over the years to a 10. Her hearing and vision had nothing to do with her score; it was her cognitive decline and dementia that led to her scores and her eventual placement in Memory Care 3 years later. Bad hearing and vision does contribute to developing dementia to begin with, however, because all the 5 senses play a role in cognition. Your mother would only face issues if given a written test; normally the MoCA test is what's given which, like I said, is 95% verbal.
Going into Memory Care AL is by no means a 'death sentence'; just another stigma attached to a higher level of care that's often warranted for a person with your mother's conditions; dementia, poor eyesight, poor hearing and a heart condition. A person does not have to be 'out of their mind' to live in Memory Care; they just have to have dementia and require a smaller environment with less decisions to make in general, and a higher caregiver to resident ratio so their needs can be better seen to. My mother plays games and socializes with the other residents & friends she's made in her MC on a daily basis! So she's not 'out of her mind' and drooling in the corner, as some people would believe the environment to be in MC, like some insane asylum of the 1800s!
At some point, your mother will have to take a cognition exam, even if you want to move her out of this ALF and into another. My mother moved from regular AL into MC in 2019 when her dementia was moderate; she's now advanced and I'm seriously glad she's where she is b/c she suddenly requires a boat load of care which is available to her in MC, thank God.
If you feel that the AL is trying to swindle you by saying your mother requires more care in MC, then by all means, look around for another AL. But be prepared for the new facility to want her tested there before entry. It's the way things are done in managed care these days.
Whatever you decide to do, good luck.
Tests are tests and some have really no bearing on one's ability to do ADLs or get through the day safely.
We don't know what the facility sees that may impact their recommendation to move. It isn't clear if OP has any details either - perhaps she didn't share them, but that is what is more important before making this decision. The hearing and eyesight issues make life more challenging (my mother also had both, along with medically treated high BP), and can impact progression of dementia, but they, in and of themselves, are not the deciding factors.
If OP doesn't have details regarding this recommendation, she should get them - difficulties mom might be having, time of day, etc. OP should also find a way to spend whole days with mom. Even with more moderate dementia, many can hold their own and seem to be of good mind when we visit. Don't lead her to places, like dining area, or suggest times for meals or activities. Let her drive and see where it takes you. Spending a whole day might be illuminating. If after several long day visits she seems to be holding her own, then defer the move. They can recommend, but they can't force it.
And NO, moving to MC isn't a death sentence. You need to vet the place first, but as with lealonnie1 and others on this forum, not all MC units are filled with drooling zombies parked in front of a TV. My mother was in one for 4 years, and it was generally a hive of activity.
As you said, she is hard of hearing and seeing, her mind is still there and she shouldn't be moved because she is use to where she is.
My Dad had macula degeneration in both eyes and he took shots once a month for a total of 8 shots and he is now 97 and he can still see enough to get around.
Testing isn't the whole answer. Some of the questions really don't relate well to every day activities. When's the last time you needed to draw a clock or count backwards by 7s? The younger generation may not even be able to draw clocks, being used to digital! Testing can document changes and progression of memory and/or cognition loss, but most of those tests don't really test day to day activity and ADL abilities.
My mother was still driving despite hearing loss and eyesight damage by MD. She was still able to get by for a while in her own place, despite dementia, but it certainly wasn't safe for her. She was only in the earlier stages, forgetting where she put supplies, what she said 2 minutes about what she asked or what answer you gave 5 minutes ago, but clearly had forgotten how to cook (not a real issue in AL, is it, since they can eat in the main dining area.) Tried to bring in aides, minimally 1hr/day to get her used to them, but she refused to let them in. If you tried to discuss AL with her, it was more like a prison, or a dirt hovel, yet her own plans included AL prior to dementia!
The place chosen was a tear down/rebuild, so we had to get by until they finished and opened MC (it was last of IL/AL/MC to open.) Just days prior to the move, her neighbor reported mom "bruised" her leg. I had no way to get there, but OB was arriving the next evening. I had him check it and send a pic - to the hospital ER ASAP! I had to threaten calling the local ambulance (it was cellulitis, which can kill!) So, she didn't have enough sense to 1) understand how serious this "bruise" was and 2) never told one of us. I'm thankful the neighbor mentioned it, even though she didn't see it.
So, the point here is there may be other issues going on that you aren't aware of/haven't observed. It would be best to get details from staff about their concerns AND spend several days (can be random, not contiguous) ALL day with her to see how she manages. No leading or prompting, give her the "wheel" and let her "drive." If she's truly having issues, she won't be able to "show time" all day every day while you are there.
To repeat myself and others: MC isn't a death sentence, it's just a higher level of care for those who need it. MD and hearing loss are NOT the deciding factors. If they were, my mother would have needed to move to MC LONG before dementia came calling! You can certainly get the testing done, but your best method for aiding the decision is to be there and observe how mom gets through the day, with NO help from you...