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Theyve told me to increase the serequil and as soon as we started it this second time he has severe diarrhea again. Has anyone else had these results from it? He also has dementia and amputee below left knee. The diarrhea is so bad it runs out everywhere and he sticks his hands in his diaper if I don't see it quick enough. Im talking diarrhea every ten minutes. Im going through wipes and diapers at an unreal rate.

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You need to insist that they discontinue this medication. My mother is in hospice with several bedsores (now). She is kept medicated with pain medications which has her sleeping a great deal. That is just as well as she is now in the severe stages of dementia along with the bedsores. I blame her previous facility where she was dropped causing both her femurs to break and then a bedsore to develop to the point that it is osteomyelitis in her bone. They just started a small dose of morphine to use in order to attempt a procedure to try to keep the newest bedsores to be treated in the hopes they would not become worse.

Please speak with your hospice team. Personally I take seroquel every few days for sleep and do not experience diarrhea but that is me. I hope you can solve this problem which is unacceptable.
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JoAnn29 Mar 2023
Are you sure these are not Kennedy ulcers.

"A Kennedy ulcer, also known as a Kennedy terminal ulcer (KTU), is a dark sore that develops rapidly during the final stages of a person's life. Kennedy ulcers grow as skin breaks down as part of the dying process. Not everyone experiences these ulcers in their final days and hours, but they're not uncommon."
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I am sure the Seroquel is the "standard, formulary" medication that is prescribed but there are other medications that can be used. Ask the Hospice Nurse to request another medication. The Hospice Doctor will approve it and then it can be prescribed and delivered.
I really am surprised that they would increase a medication or continue to prescribe it if they are aware of the side effects that are being experienced.
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Tlholland Mar 2023
All she had to say was, well I've never heard of it causing diarrhea, but it's going on four days. I started it again and he's got explosive diarrhea.
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Hospice is supposed to be about maintaining quality of life for both the patient and their caregivers, it seems as though the agency you are using hasn't got the right attitude. Remember that YOU are 100% in control of this so don't let anyone bully you into accepting any advice you disagree with. Ask to talk directly to the doctor.
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Just because hospice suggests or pushes a medication on someone, doesn't mean that you have to give it to him. Whoever is doing the actual caring for your FIL has the final say as to what he takes and doesn't take.
You or whoever is doing the hands on caring has to be a strong advocate for your FIL and sometimes that means learning to say no. As in NO!
So don't be afraid to speak up to the hospice nurse or anyone else affiliated with your hospice agency to ensure that your FIL is receiving the best care possible.
And if it's gotten to be too much to keep him in your home, you may have to have him placed in a nursing facility.
I wish you all well.
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Tell hospice he needs an alternative medication. His meds should not cause additional work for anyone. Seroquel is obviously causing discomfort.
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Change medications
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If I am the one cleaning up the mess than I would not be giving it.

Here are some alternatives I looked up

Quetiapine (Seroquel) Alternatives Compared · Zolpidem · Belsomra · Dayvigo · Temazepam · Quviviq · Amitriptyline.
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As a caregiver... I would stop! You know what is happening and Hospice only knows what they think works. All people are different, our bodies either accept or reject medication. If the reaction is diarrhea and a rash you need to quit and give something else. You can also try a smaller dose cut the pill in half or fourths. I do this with my allergy pill because my allergies are so bad and it works for me however it may not work for the next guy. Blessings
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Hospice used Ativan with my mom, worked well for her. You can always ask them to change her anti anxiety medication.
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