I know CBD products work well in some areas. I know as a consumer we should be careful where it is purchased. It isn’t regulated as well as it should be.
I do not not have any personal experience so I am reaching out to the forum. Should I bring it up to her neurologist?
1) can't make a statement of effectiveness (because there's no real clinical, peer-reviewed proof that it works, like all FDA-approved drugs need to do)
2) can be made in someone's basement, garage, porch, dirty kitchen or any other unsanitary place, unlike real pharmaceuticals. Just because the product has a nice label and official bottle means nothing. (it may contain CBD, but it may also contain dirt, hair, crumbs, literally anything else besides CBD and you'd never know).
3) doses are not necessarily consistent in each capsule, bottle. It is not guaranteed (even capsules all from the same bottle or one bottle of oil to the next from same maker)
4) purity of content is not guaranteed (meaning maker could be thinning the product with other oils or other substances to stretch the batch and make more money. It may contain no CBD at all but you'd never know it. It could also contain THC which would be a big problem)
CBD oil hasn't been in use long enough to know what long-term or adverse permanent effects it may have on people. People who take it today ARE the guinea pigs for tomorrow's research.
The "placebo effect" accounts for 20% of efficacy (because one expects it to work, then one believes it is working). This is a proven scientific phenomenon. So knowing all this, please temper your decision and expectations. If your LO thinks it will work and they benefit from the 20% Placebo Effect, then it has some limited value. But definitely tell the neurologist if she is taking it! Just because something is "natural" doesn't mean it is not a chemical -- it still is a chemical and interacts with other chemicals/medications. Her neurologist/pharmacist can't help you if they don't have all her accurate information.
Find yourself an Eastern Medicine practitioner or registered dietician or someone whose open-minded and will work with you. With most diseases, there is no magic bullet and CBD oil is not one either.
My neighbor who was going through severe menopause uses CBD oil and she looks so much better. She puts a few drops under her tongue at night at bedtime and she's not fatigued nor sweating profusely.
My mom is on CBD, not for Parkinson's but for pain. Do some research. I suggest organic, full spectrum, etc. Ask the person working at your local health food store or food co-op for a recommendation. The lady at our local shop said that one trick with CBD is to make sure you take enough. One guy, about 300 lbs, complained that it was not working for him and she pointed out that he was taking a small amount which could not give him any relief. He upped his dose and received benefit from it.
It helps my mom's pain. When she remembers to take it.
I saw this thing on television awhile back with elderly people who were curious about marijuana in Colorado. At first they felt awkward. Then they started buying and using the CBD products because they were helpful with arthritis and other issues.