I went to visit my 91 y.o. mother with alzheimers/dementia and other physical ailments. She currently is a resident of Delaware. She resides in my brother's home and she has 24 hour caregivers which are paidfrom my mother's funds. My brother has POA. I discovered that my visit with my mother in her bedroom without anyone else present was both filmed and recorded. I did not give permission and given my mother's condition, I sincerely doubt that she gave permission either. Does anyone have any thoughts concerning my brother's belief that he has the right to film all that goes on in her bedroom given he has her POA? He also has his housekeeper sign for mail restricted to my mother using my mother's name. Thanks, Chad
When Mom was here with me I used 'camera's to keep an eye on Mom so she could feel independent and yet I could still 'see' what she was doing. There were many ways this helped me. I could tell when she woke up in the middle of night, the 'motion detector' would turn on the tv in my room and I could 'check in' with Mom without disturbing her. I could tell when she was anxious without hovering over her ALL the time. I could tell when she was scared, and offer my support. I could tell when she was NOT in the mood for company and I left her alone (for a while). I could 'remind' her that there WAS water in her room, and that we DO love her, and that she WAS safe and not alone.
This provided me with 'insights' to her anxieties and concerns. "They took my ....... (fill in the blank)!" A common problem with Alzheimer's. A quick 'review of Mom's activity in her room would show that the "...." was in the drawer, purse, garbage, box ELSEwhere in her room. "I am SO hungry... they didn't give me anything to eat today" !!! That meant she was hungry AGAIN, and needed another snack, so she could fall asleep full and happy.
My brother ALSO noticed a camera on one of his FEW visits, and thought this 'observation' was a violation of my mother's privacy too, but I begged to differ. After hearing her tell my 'other' brother that we would put her to bed without supper, or water, or clean bedding' prompted me a NEED to be able to support what was going on. I wasn't being defensive, I was being careful. SO many elder abuse cases start when an untrue statement is made by a sweet little old lady! And it may not be the fault of the caregiver at ALL! (hired or family).
As far as being 'filmed' "I" was on these films too, and I learned more about myself sometimes than I did about my mother. After careful review of some 'daily activities' early into my caregiver capacity, I noticed that "I" wasn't being as patient as I could have been, or as 'responsive' as I could have been. I also learned what annoyed my mother when she thought I wasn't watching. Boy did I learn quickly what worked and what didn't.
I was NOT spying on my mother, I was NOT posting video of her escapades on You-Tube. I was learning how to deal with her Alzheimer's and also how to protect myself from what could easily have been a family feud on how I was caring for my mother while she was here with me.
Did I have the camera going 24/7? Nope... do I wish I would have? YES!! Now that my mother is gone, I actually would welcome just seeing her doing anything!
I know many people are intimidated by cameras, but believe me, after a few days, even the person that installed the camera 'forgets' the camera is there. And just be yourself! There's no director/producer there telling you what to do, just do what you would normally do.
My brother would GOAD my mother when she was in his care, and then 'film her' while she was having a meltdown. He would take a camera out and FILM her, telling her that SHE was being mean, etc. THAT was cruel. I never did that.. I truly intended it to be a good tool.
I honestly believe that if cameras WERE allowed in nursing homes, there would be MUCH MUCH less abuse and neglect than what we are seeing now! Even in FIVE star places, there is room for improvement!
In my humble opinion, it's not an invasion of privacy that nursing homes are afraid of, it's LIABILITY for the (lack of) care they are providing! I think we should ALL behave like the world is watching ALL the time. Maybe that would make us kinder, and more accountable for our actions.
I do not know your brother's intention for filming your mother, but I also applaud him for recording her care when there is an outside caregiver involved. SO many of the best caregivers (unintentonally) ignore or neglect their charges, and we would NEVER know. Advising a caregiver that they are being monitored is morally suggested (if not legally) but if they have a problem with that, then they should NOT be caring for your loved one. With Alzheimer's we can't rely on our 'loved one's' recollection of how they were treated.
Talk to your brother about his reason. Ask if "his" interactions with your mother are also recorded, and ask if you can 'review these tapes. You may see that there is nothing wrong with this practice, if it is done for the good of your mother!!!
Not an easy topic to discuss... but one worth discussing!
i can understand if u think shes begin mistreated one way or another then i would have that camera on her and caregiver till u find nothing s wrong then it should be shut off .
24-7 just for the hell of it , its crazy ...
But I don't think the filming WOULD be happening unless there was a danger of abuse by caregivers or anyone else, (which I think we all know is way too common.)
Why else would the money be spent to install them?
Again, I say that respect for the privacy of all involved is a priority, but that the safety of the vulnerable trumps that, in my opinion.
"There may be state laws that come into play, here. I'd ask an elder law attorney or some attorney who knows your state laws.
You should be able to, but in some states you may not.
Be safe - especially if you have a bad relationship with siblings.
Carol"
I can see where it would have heavy jurisdiction implications.
I still haven't seen a response from the LEGAL section of this site, maybe we're breaking new ground here?
I appreciate all the thought provocative thoughts concerning the issue of filming the elder and their visitors. My gut really says it is wrong to do so without any approval. I have found that some states require both parties to agree and others just require the agreement of one. And there are federal issues requiring some modicum of approval. The POA might be able to approve for the elder which would indicate that the elder can't make decisions for themselves. And, that enters into other legal concerns because they are no longer considered of sound mind. There are laws concerning wiretapping and filming without permission. And, there is the presumption that places like one's bedroom are considered private and should not ordinarily be invaded. I don't doubt that there can be good reason to monitor but what are the controls in place to do it right and within the laws of the jurisdiction. As long as we are human even through burial, privacy is kinda sacred and should be protected. I can see that exceptions might exist but those should be within the laws of the jurisdiction. All on this site have the elder needing care in their best interest. We want to do the right thing. Sometimes, we just need some advice and perhaps support. Thanks
Call the local police and report your brother. A POA does not grant this type of behavior. Guardianship MAY give a guardian rights, but not filming a person in their own bedroom.
But back to the original question;.
Privacy? good. Cameras?, good also.
also, I have posted the question to the "experts" in the section of this site labeled "Legal". I'd like to get a definitive answer.
As for the situation on the restricted mail signed by a housekeeper-I would still persue the legality of this as I had indicated previously.
Your concerns I think are very real-and need to be addressed-so you can move on.
Best~
Hap