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I've been caregiving for my Mom for the last 3 years has anyone experienced long term Friends drifting away or having little compassion or understanding because they have never been thru this journey?
Yes, it is challenging. The further along in the progression, the more friends disappear. And it is not just the person with Alzheimer's who's friends disappear... The caregiver's friends also tend to leave. I know I had to really work at keeping social while full time caring for my mom. Mom had some friends who stuck around for quite a while... Then some who continued to call and check on her to the end. I was blessed with a supportive husband, and adult children, and grandchildren. I also had a couple of friends that called and kept me sain.
It is challenging I have one long time Friend who used to call me all the time perhaps a little too much now I realize that the phone conversations were pretty much about her when my Mom's caregiving needs increased and also she was in and out of the hospital and rehab I no longer had the strength or time to contribute she had no understanding of the situation nor compassion the phone calls are now far and few but I actually feel relieved and have gotten closer to other Friends that have take care of elderly parents I hear you its very hard balancing the social and taking time for yourself during this time My Mom is 95 and her Friends who are younger always call and send flowers my Husband and I got married for the first time no children but like yourself he's very supportive his Father is also in an Assisted living close to my Mom's.
YES to both. My mom's friends have died mostly or are so,old.
I can tell you that my own mother did not see herself as one of ' those people'. She thought she was different. Special. Alas no, she was not. In MC now.
Hi. This is where you find out who’s a friend and who’s just an aquantince. I have been very lucky that even now that we have moved away his friends still call him and inquire after him. I have several I could visit with at any time. So lucky. It’s family that usually let you down. Besides you don’t have any time for those people anymore. Even if it’s just one good friend that’s all you need
Hi, Thank you for your response yes my Brother is out of state and pretty much a non participant I have actually gotten closer to Friends that have been caregivers and they offer to help
Thank you so much for your input I have fortunately hooked up with Friends on the same page and actually due to arthritis I swim with seniors in a therapy pool I'm 59 but they are very social and have been thru this journey and have lost parents I'm really trying to balance activities and taking care of Mom. I cant fault Friends that don't get it caregiving changes you a lot for the good.
Absolutely, I watched my mother’s friends mostly drift away, and found that mine could only handle limited conversation about my aging parents and their issues. It’s the reality of human nature that most people don’t want to hear or be around what they perceive as the negative parts of life. They don’t like that it could one day be their situation, or they don’t know what to say, or they are just caught up in their own lives. I feel the disappointment but I also came to a place of accepting that they’re still decent people, friends for what we like about them, not what disappoints us, and if the tables were turned I don’t know how much I’d want to listen either. I’ve found it best to stay in touch, though it may be less, and not ignore my dad, but also limit how much I focus on his situation in conversation. One day he’ll be gone and I’ll need those friends despite their shortcomings
Yes. It happens. Fortunately for my mother she still has close friends who call her and visit somewhat regularly. Me on the other hand see friends become suddenly silent if I say anything so I mostly don't mention it. If anyone asks I just say "oh, she's about the same." I hold no grudges because before my mom got the disease I know I reacted similarly. I had no clue how it affects everyone, did not know what to say, and frankly was scared it may happen in my own family. When it did, boy I tried to learn quickly and now hope I can be of some benefit to others on this road. Also, fyi you aren't alone you have all of us :)
I think Daughterof1930 and some others may have hit it right on when she said people just don't know what to say. I have experienced this with my friend who is caregiving for her mom. I try to be there for her to vent but sometimes there just isn't anything I can say to comfort or encourage her, and there have been times I have absolutely said the wrong thing!
As a caregiver's friend, it's hard for us, too. I just want to make it better for her, and I can't. Unfortunately, it is easier for a friend to walk away or move on than it is for a caregiver, who is in it for the long haul.
I'm truly sorry that caregivers, who not only have their plates full to overflowing with all that is required of them in taking care of their LOs, also have to work at maintaining relationships with what should be their support system. Hugs to you all! 💖
Yes, so called friends started drifting away even before DW was diagnosed. Now only one of them ever calls or checks on her. DW would really love to see them too. Even though she cannot speak clearly if she talks at all. She would really love to sit down and eat with them some of her favorite foods that I cannot prepare.
Thank you for your reply its very hard to see them drifting away perhaps they will not get it until they are presented with this journey it wouldn't take much to spend a little time and have a meal some people just cant handle being around declining people sad
I think the important thing is that you've put your finger on the reason - they have no compassion or understanding because they have no idea. And it is certainly true that this is when you find out who your real friends are.
If your friends still have parents and husbands and wives, there is a good chance that one day they will look back and understand what you're going through now, and regret that they didn't do more. But for one thing, this is not something you'd wish on anyone, no matter what; and for another, how you support them then is about what you're like, not what they were like before they learned better.
Do you have individuals in mind? Are there things they could do for you if they knew what to do? TALK to them!
What hurts alittle is when my Best Friends since high school simply avoids asking me about my Mom and the calls have been much less she has always been somewhat needy and I simply dont have the time anymore my other Friends that I have become closer to have been through this journey and offer to help. It's actually becoming awkward when I speak to my long term Friend I've changed and I dont think we will be as close as we were she actually told me at one point "well you know your Mom is 95" which hurt I get it.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
I can tell you that my own mother did not see herself as one of ' those people'. She thought she was different. Special. Alas no, she was not. In MC now.
As a caregiver's friend, it's hard for us, too. I just want to make it better for her, and I can't. Unfortunately, it is easier for a friend to walk away or move on than it is for a caregiver, who is in it for the long haul.
I'm truly sorry that caregivers, who not only have their plates full to overflowing with all that is required of them in taking care of their LOs, also have to work at maintaining relationships with what should be their support system. Hugs to you all! 💖
DW would really love to see them too. Even though she cannot speak clearly if she talks at all. She would really love to sit down and eat with them some of her favorite foods that I cannot prepare.
If your friends still have parents and husbands and wives, there is a good chance that one day they will look back and understand what you're going through now, and regret that they didn't do more. But for one thing, this is not something you'd wish on anyone, no matter what; and for another, how you support them then is about what you're like, not what they were like before they learned better.
Do you have individuals in mind? Are there things they could do for you if they knew what to do? TALK to them!
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