My Uncle has dementia and recently had a seizure. The decline he suffered resulted in hospice care. He has improved, except his speech. He is prevented from walking on his own by being in a reclined wheelchair. His effort and persistent acts of trying to get out of chair seem to be signs of improvement to give physical therapy a chance.
I would think your uncle could be evaluated by his MD and physical therapy to see if it's even an option at this point. What seems to you like improvement could mean something entirely different to the doctors and PTs. Then again, it could indeed mean he's ready for PT and the possibility of improvement, and you could then proceed with your inquiry to hospice.
When my mother was on hospice, physical therapy was not an option. I think once you know where your uncle stands after his MD and PT evaluate him, then you can proceed accordingly. No need to ask hospice the question if he's deemed unfit for PT in the first place. One step at a time, right?
Best of luck to you and your uncle, however this turns out.
She recently was bedfast for several months. We took her off hospice to take rehab and when rehab stopped, we put her back on hospice. It did help strengthen her for transitions and she is willing to get into her wheelchair now whereas before she would not. So we count it as a win.
Many here on the forum will try to dissuade you from seeking therapy as they feel it is not appropriate for someone who is supposed to be dying within six months. I’m not sure if different states are being monitored to see if expenses are less for those on hospice vs those who go back and forth to the hospital, but it seems less expensive (for the gov)to have hospice even if the patient remains on hospice for years. Aunt has been on hospice for over two years and it was my request to take her off for the rehab, not the hospice company . So there was no push to take her off hospice. She is 95 with dementia and she seems to me she could live for years in her present state.
About having therapy while on palliative care, I have no experience with that. .
About your uncle trying to get up. My FIL did this after having a head trauma from a bad fall. After therapy he was able to regain his total mobility. This took months from fall to mobility. But there was a period of time where he had to be restrained or he would try to get out of bed, or out of his chair. He was very persistent and did fall again while In rehab. Thankfully that fall didn’t set him back and as I said he was able to remain mobile until he fell again 10 yrs later which led to his death.
We have a good bit of discussion about hospice on agingcare.com and posters have had different experiences. There is no One and only rule is what I have come to realize.
Plus insurance companies have different services they will pay for so there is that. The Medicare Advantage plans are different from one another on what they cover and for sure they are all different from original Medicare which is what I deal with. And, of course there are Medicaid plans some are on. So it is difficult to give you a hard and fast rule that all will agree to.
I know it is hard to see your uncle want to get up and not be allowed to do so. Good luck in checking it out for him.
My 95 yo mother is in that program currently. Even though she qualifies for hospice care because of her dementia, she's not quite at the point where hospice would be of any help and is getting more benefit from weekly physical therapy, so for the mean time I'm keeping her under palliative care, which is still medical and care help as needed 24/7.
https://www.foxrehab.org/
This company can probably best answer all your questions. I know others who have used this company during hospice as well as other times when they thought therapy was not covered.
Fox does in home therapy and you don’t have to be “home bound” to qualify.
Also check out…
https://medicareadvocacy.org/jimmo-v-sebelius-federal-settlement-invalidated-medicare-improvement-requirement/
Physical therapy can continue for maintenance in some cases.
There is a lot of misinformation in the area of therapies. Not all providers are aware of the policy changes in Medicare or they may not want to do the documentation required for the services to be covered.
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