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My husband and I sold our home and moved in with my dad ten years ago when he had a stroke. A couple years later he was diagnosed with dementia. My dad and I have always been very close and he has a wonderful relationship with my husband. I can tell you this arrangement has been a million times worse than I could have ever imagined. Our friends are spending their retirement traveling and enjoying life and we haven't had a real vacation in 10 years. Dad fired every health aid we hired and he absolutely refuses to sell his house and move into assisted living. One of us has to be with him 24/7 so we are not able to do anything together as a couple outside our home. The stress of taking care of an elderly parent, especially one with dementia is overwhelming.
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WFW10312 Nov 2018
Dadscaregiver1, wow, I am terribly sorry that you have been put between a rock and a hard place. I hope that you are able to find relief soon and that your dad will come around to other options.
Thank you for sharing your personal experience. I guess that's something that I hadn't considered...that if he got used to relying on us and refused to leave his home and fired his aides, then we'd feel "stuck." We already haven't been on a vacation in over five years. Our last real vacation was our honeymoon. We were on the bottom of the totem pole at our jobs fresh out of college when we got married, so we only had ten days of vacation and used it all to have our wedding in our hometown and go on a five day honeymoon. Many of our friends went on a honeymoon twice as long and go on vacation multiple times a year like yours. Instead of going on vacation, we've spent all of our time off traveling back home to see our family a few times per year. We thought moving back would free up more time for vacation, but I see now that attaching ourselves to my dad could prohibit us from doing so if not now, then possibly soon when he needs help. The reality is that he may need help sooner than later because even if he lives to 100, most people don't make it well into their 90s without needing some sort of assistance. My husband and I are only thirty. I feel like I missed out a lot on my childhood, and I don't want the same for my children. Thank you for getting more of my thoughts stirring. I wish you luck getting out of your rut.
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WFW,
A few more things I’d like to add....As I mentioned, I always had a good relationship with my parents. One of the saddest things that has occurred is that now, in the last years of my father’s life, my relationship with him is filled with negativity and bad feelings. I know that my only “out” is when he dies. It is almost impossible to make a u-turn and ask him to go into an assisted living after two years of living with us - it would break his heart and leave me with nothing but guilt.
Finances were never a part of the picture - my husband and I are well off and my father has a good income and assets - yet, he has a negative image of any assisted living establishment and thinks “if I have to go there, it means my daughter doesn’t love me”. It’s a sort of emotional blackmail and though I don’t think he really means to make me unhappy, the current situation has made me miserable. Even though he could well afford a nice nursing home, it is something he has always insisted that he would NOT want to do. So, because I started down this road, I am stuck in my situation with him and the worst part is that after 60 some good years, our final years with him are going to be filled with resentment on my part for those last years.
As an only child like me, you also, have probably been used to a lot of privacy - and that will end. Friends tell me to “Get out of the house and do things”, yet the worst part is that there is no privacy or quiet time for me in my OWN home. Elderly people become very critical of the world immediately around them, and as his caretaker, you become his world. He exudes a lot of negativity..... whether it is about politics, tv shows, family members, or people in general - it can become a real drag on you. The world, for the mind of an elderly person, exists only 6 inches beyond their body - they become very anxious, grouchy, and non-compliant about any changes around them.
Trust me, for the well being of your marriage, your child, and your own mental health, it will be best for you to live nearby, but NOT with him. You will have no escape once you go down this road - and you will have a much better relationship with him at arms length. Good luck, I know it’s a difficult decision, but listen to those people on this board who have lived thru similar situations.....there is a reason they take the time to alert others about the path ahead.
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BlackHole Nov 2018
good advice
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If he has to go into care, the house will probably have to pay for it. If he doesn't have the 1000s of dollars a month needed for care for an indefinite time and no longterm care insurance, the caregivers will want the house sold to pay them. I think it becomes a federal (Medicare) issue. Others have pointed out the tax consequences of passing the house on to you before he dies.
Seems like you will need an appointment with and estate planner before your dad gets too much older. Good luck. You will have your eldercare heartbreak sooner than many of us do, so most likely will weather it better than old ppl often do.
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WFW10312 Nov 2018
Whyarewe, thank you for the advice. I am taking notes. I do hope that my young age helps me get through this; however, I am honestly not very optimistic, as although I have to weather this much sooner in life than most, I will likely have two rounds of it. My dad is 85, but my mom is only 60. My husbands parents are also early 60s. I fear that we could be caring for our loved ones for the rest of our lives if we aren't careful to plan things as best as we can. I pray often that everything turns out well in the end for all of us. As selfish as this sounds, it's sad to me that I have to go through this at such a young age. Don't get me wrong, I don't want to pity myself, but most of my friends are just getting their lives started with their husbands and children, and as I'm doing that, I'm also having to worry about things most people don't worry with until they're near retirement age. Despite that, I am forever grateful that I've been blessed with parents from two generations, both with very different outlooks on life and an array of experiences and insight to pass down.
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I agree with the others .... it’s a No. I had dad with dementia stay with us for four months and I can tell you, even though he was in MY house, my family and I had NO privacy or family time. My two kids (18 and 20) were home from college but they stopped inviting friends over to the house because it was impossible to just sit in the kitchen or in the yard without dad walking through, interjecting into the conversation, or sitting outside on a lawn chair watching them. Trust me, dad walked freely through the house no matter who was over and what was going on. He didn’t understand the idea of “bad timing” when a private conversation might have been going on, or someone had “company” over. If he wanted to lay on the couch and snore while the kids had friends over watching a movie, he did. Asking him politely to lay on the couch in another room did NO good. He was argumentative, belligerent, and stubborn. I had more peace sitting in the food court at the mall!
unless you’ve tried it out fir a few weeks or months, I would not sell your house and move until you’re 100% sure you can handle the loss of privacy, independence, and the role of caregiver full time.
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WFW10312 Nov 2018
Dadsakid, thank you for your input and experience. It sounds like many of these experiences sound similar, and I'm giving them a lot of consideration. My first child is only a baby, and we plan to have more. I don't want my children's lives to be hindered by my dad, and I don't think he would want that either (although, he might not realize if he's doing it by us living with him).
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My parents moved three houses down from me while in their early 60s. At the time I thought the world of them and that it would be a good arrangement to live close. By the time they were in their early 70s it all went downhill fast and the spiral of negativity continues. Dad just turned 80, mom 76. It's been the most miserable experience of my life and I know my caregiver role is likely to continue until I myself am on the older side as well. Everything has changed and for the worse. If I could change one thing in my life it would be to have kept a distance from this mess. It has significantly reduced my independence and ability to live the life I want.
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Living near your parent doesn't always work out well either if he/she refuses supportive care/helpers. My mother cared for my father with vascular dementia while I lived down the street in my own home. I was in their home at least every 2 days and Mom came to my home almost daily as her brief respite from Dad. As my parents entered their 80s, Dad's condition deteriorated significantly and the stress and strain really started impacting my mother's health. Now they needed me at the house daily, often multiple times a day. Mom was open to having help but Dad didn't want anyone in his house so even the housekeeper I hired caused more stress for Mom. Dad was an aggressive personality before his dementia, he was often an over the top vicious personality after dementia took its toll. Eventually Dad was forced to MC and Mom came to live with me.

I love having Mom here with me. I know she is well and finally enjoying her golden years. She has a special relationship with her youngest great-grandson (4) where he visits for Grandma to read to him or he watches cartoons and plays at her feet. There have been some challenges in her care, particularly this year when she has been injured twice in falls. I'm not quite as tied down to the house as many because I moved next door to family and usually have someone to stay in the house with Mom while I escape for an hour or two. I can also afford to hire a care giver when I need to work in the office.

For me, the arrangement works very well. The time I spend caring for Mom is less than the time I would spending traveling to her home to provide the same care or maybe even just visiting if she were in a facility. There's less stress worrying about her, which would come back to a degree if she were in a facility. Mom and I agreed before she moved in that we would keep this arrangement as long as possible, but if a time comes when she needs 24/7 nursing care, then she would need to enter a facility and I would visit and make sure she has good care. There have been adjustments I have needed to make to deal with Mom's short term memory issues and general aging. Currently Mom isn't very mobile (knee is healing from last fall) and we're using incontinence underwear that I must be around/back to change so my time outside the house is more limited. I don't miss any "privacy" by having Mom in my home; I feel the kids impact my privacy much more. Mom has a sister who's 20 years younger and Mom stays with her when I need to travel for business or take a vacation with the kids.

My advice is that your father's personality and your (and your husband's) ability to compromise and adapt with changing events and needs will be the biggest drivers of how successful a multi-generational home will be. If your father died next week and you inherited that house, would you choose to live there with your family? If the answer to that question is no, then I don't think you should consider moving back into that house. When your father needs help with his ADLs will he accept an in-home companion/caregiver? Will there be resources available for in-home care beyond the few hours a week Medicare will provide for bathing and personal care assistance? When you want to take the kids out for a few hours or go on vacation? My Mom loves to watch the kids play and goes with us to pools and parks - anywhere she can take a perch and watch the happenings.

Are there resources and land available to build a study/suite for Dad on the main level? Those stairs can become a problem for you down the road. If the basement is completely below ground with no natural light or fire escape, it may not even be a legal bedroom area.

Lots of people here have told you they didn't know what they were getting into bringing a parent into their home, got "trapped" and now feel they made the wrong choice. Not everyone feels that way; not every parent is the same. Consult an attorney then consider and plan carefully.
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I would not do it. What shape is the house in? A large older home could turn into the "money pit". Plus it will always be considered "his" house. You have your life and I think your home should be separate from your parents. I've been doing the care-giving thing for a long time now. My mom is almost 92, still drives to the grocery store and can cook. But she's very stubborn, hard of hearing, narcissistic and STILL tries to control me and I'm almost 60! I sometimes wonder what is to become of me because I'm single, with no kids. I will NOT have the luxury that she did as I am her chauffeur, and take care of everything in the home, repairs, bills, etc. I'm glad she's independent because I have to work full time but am not sure what to do when she is not. I'll cross that bridge when I come to it. I know many people consider it an honor to care for their aging parents but it's hard even if you have a wonderful relationship. My mom has always been somewhat controlling. She's gotten better but recently wanted to know why I still have to work? Huh??? I really resent older people that do not make arrangements for their care and place that burden on their children. My mom has this attitude she's above paying rent for her own place! Really irks me - but I figure I'm on the down slope. I'm trying to do the right thing but I feel like I've given up the best years of my life with no privacy or time to myself. She's butted into my personal relationships so I don't even try to date anymore. We have lived together for a total of 20 years off/on. Long story short... my father died at 68 with no insurance. She had no where to go and stayed with me. I slept on a couch for 4 years. I was young - 23 and trying to start my life. I really regret not moving far, far away from all the drama. But it's too late now so hopefully I can stick it out and when she passes I will not have anything to feel guilty about. I did everything humanly possible for her even though at times I feel very unappreciated. Good luck!
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Don’t do it, I did and regret it everyday 24 hours a day.
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