My wife and I live in a beautiful 3200 sq. foot home in the mts. of CO. We only use the master bedroom and bathroom. I use the kitchen to prepare very easy meals. My wife had an AD diagnosis 5 yrs. ago but was probably showing signs several years before that. She is in stage 5+ of the disease. I plan to take care of her for the rest of her life (I am 81 and in good health, she is 78 and in good health except for the AD). I would like to know what is needed in this apartment that our daughter and son-in-law are going to build. Any specific types of furniture, bathroom aids. Types of toilets, showers, etc. Kitchenette facilities. A/C, fans. Types of beds. I am assuming that the apt. will be basically one large room and that is all we need. Being close to our daughter and assistance will be very helpful. Now we live about an hour away from Boulder or Golden, CO. I have always been very capable of building and preparing construction but now I need more specific advice to confront circumstances that are brand new to my wife and myself. Any advice will be greatly appreciated.
I have done a lot of research myself but we are entering uncharted territory and I would love any voices of experience from people who have been down this road before.
Thank you. Eddie B.
If daughter can't give you her master to remodel and she move above garage, this is a moot point so don't go.
Good luck!
And, as previous poster said, it is much more realistic for you to be in independent living as you take care of your wife, as meals, nurse, and everything else is taken care of, and in one bill. Independent living with various levels of care available for when your wife has progressed further would be good. For example, independent living, assisted living, and memory care options in one place. Or, independent/assisted living now that has a memory care facility close so you can visit and be with your wife and not have to drive far, or can walk there. You're 81 and doing well now, but be prepared for the future. Alzheimer's association says that 50 percent of people 85 and older get Alzheimer's/dementia. Plan for the worst and hope for the best. Good luck!
While having cared for aging parents (you mentioned all 4), you did not indicate what their conditions/issues were. Caring for aging parents has many concerns and issues, but adding in any kind of dementia changes the rules. Also, although you are currently in good health, that could change at any time. Adding in the decline your wife will have and any potential medical issues either of you might develop, is your daughter and her family prepared to having to take on full care for you and your wife? Caring for our parents is idealistic and something many wish to accomplish, but many people on this site can attest to how devastating and overwhelming this can be/become. You even mention your concerns about this in your profile. My parents and my mother's sisters cared for their mother, however she was very easy to care for. My father's YB took care of his mother (he never married and lived with her to the end.) Neither had any dementia, just normal aging issues.
There's plenty of advice been given and a lot for you to digest. Having no experience with preparing and/or building a handicap access space, I suggest what the others did - seek professional advice. This will ensure you meet all building codes and pitfalls. I can say no way could my place accommodate my mother - full stairs access only, stairs are split with a landing, so even a chair lift wouldn't work and no room for bathrooms (both very small) to be modified for handicap access, etc. When we sold mom's condo, the people who bought it installed a chairlift, so the wife could access the finished basement area. Personally I thought this was a huge mistake for them! Having video cameras installed for when mom was living there and before the sale, I watched her struggle to get up the 3 steps and over the threshold to get into the place with her walker. One MC place we checked was off the list quickly for many reasons, but a big one was that it was located on the second floor. How do you get all those people with cognitive issues out, many with walkers or wheelchairs, in the event of a fire or other emergency without using an elevator?
There are many comments posted about the stairs/access. That is a big concern. While there are options, such as stair lift, lift, elevator, those may not be practical. Without knowing what area of CA this is in (fire risk?), there are and will be power outages anywhere. Will you have enough backup power to use a lift of any kind and/or run heat and A/C? In the event of a fire, elevators should not be used, so that might not be practical. Other issues are access to senior services, emergency services, etc (is it a remote area?)
Others have also suggested you consult with an Elder Care attorney. You need to protect yourselves and your assets. If you plan to put money into the building of this "apartment", will MediCal (CA form of Medicaid) consider it "gifting"? Even if there is no Medicaid issue, many states have residency requirements (I have read 2 years, but it could vary by state.) Do you (and your children, as backup) have the DPOAs and MPOAs set up for both of you? If something happened to your daughter, would SIL want to continue this arrangement? As someone else said, if they split up (it happens!), where does that leave you and any investment you make in the building? Please do find a good EC attorney and discuss everything - this arrangement, wills, trusts, POA, etc.
You have a lot more thinking/planning to do. Even with the best laid out plans, there are likely to be other issues that arise too. Although AL can be expensive (would it be more than this building?), a nice one near one of your children might be a better option.
http://www.hcd.ca.gov/policy-research/AccessoryDwellingUnits.shtml
I am in my 70's. My sig other was a jogger most of his life, and he goes to the gym weekly, but he had fallen down our stairs at least 3 times in the past 5 years. All due to side effects from new medication. I am thinking about adding another stair rail so one has two rails to hang onto when descending the stairs.
Both my parents were healthy and active in their late 80's early 90's, walked 2 miles per day. But as Alva had mention, this can all change in a matter of seconds. My parents refused to move from their 3 story house, and have both fallen down the stairs on more than one occasion that they would admit. Evently my Dad moved to to Independent Living, and could kick himself for not moving years early after my Mom had passed due to a serious fall at the house.
If you can budget for Independent Living at a senior facility, it would be a better choice, plus you would be around people of your own age group. No housekeeping to worry about, no meals to prepare, etc. And a nurse is on duty around the clock. The newer facilities are like hotels.
Wynesta
Your post is thoughtful, but including reference to a commercial facility in my opinion makes it advertising.
(I timed it before I just stopped opening the window at all.)
I can't imagine what could happen if those kinds of fumes penetrated someone's living area.
If you actually go through with this, the landing and the stairs going to 2nd floor need to be wide enough to get a gurney up, turn, and get into a door in the event an ambulance has to come. You could consider a lift chair that travels up and down the stairs and add some safety features to avoid falling as you get on/off the chair.
If you are considering a move to be closer to family, why not just check out some AL facilities that are similar to apartments. They have usually set up floor plans to accommodate wheelchairs and easy access to all rooms. And you have someone on duty should you need some help. There is every possibility you could sink a lot of money into a remodel that will only work for a very brief period of time for one or both of you. I would really be thinking about the 'what if's' that would prevent you from living on a 2nd floor at this point in your life.
Two things I like to add. First, you mentioned in you profile that you are very concerned about your own heath since you're already 80 years old. Statistically, you will go first before your wife even though she has Alzheimer's. What will happen to her when you're gone? Who will take care of your wife 24/7? It is a huge task to take care of a dementia patient 24/7/365. If you daughter steps up, she will have to give up her entire life as she knows it.
If your daughter were to come to this site and ask for advice on whether she should be adding a second floor room to her house and have her aging dad and Alz. mother move in, she would get a resounding NO, not because we think she shouldn't take care of her parents, but because she will NOT be able to provide the care that you and your wife will eventually need without giving up her whole life and existence, and health and sanity. If that's what she prepares to do and knows what she's getting into, then go for it.
To the gentleman that posed the question, I'd like to suggest he visit some Assisted Living facilities and take note of the layout options. You can even get floorpans from them and design the over the garage living space similar to that style should you go that route. While there take note too of the adaptive measures in place like the wide doorways, w/c accessible shower, raised toilet seats w/handrails, bright, cheery lighting, etc. I hope this helps and wishing you the best.
I share the concerns about being upstairs and I also share the concerns of burnout. I’ve been caring for my husband 24x7 without any outside support. I’m seeking someone for 1-2 afternoons each week to give myself a break. My father had Alzheimer’s and he lived 7 years after a major stroke. The doctors had given him 90 days.
And, at the end of the day, this is your decision. There has been some valuable advice here about permits and lifts and bathrooms, etc. You know your situation best and make the best decision at the time. If things change, maybe your living conditions will change to.
Good Luck!
- Higher standing toilet
- Toilet with bidet
- Bedside commode
- Walk-in shower with seat/soaking tub/accessories
- Safety latches on cabinets
- Riding stair rail if required for multiple stories
- Rollator walker
- Cassette medicine cases (different colors - one for day and one for night)
- Easy accessibility to doctor and specialists' contact info
- Respite for yourself
- Life Alert
- Secured case for vehicle keys
- Remove ALL scatter rugs
Yes, California is a high tax state and also highly regulated with many nanny-type laws. If you are caring for an Alz. patient you may find health officials coming around and poking their noses into your apartment more than you would like. How are you disposing of medical and hygienic wastes, for example? Have you figured on having a solar panel and electrical system, now required in Ca. for new construction, as I understand it? California is determined to save the planet all by themselves; they are banning the use of natural gas in some areas. With high taxes and high regulation you might think you would be able to get good service - municipal service etc., probably not.
Have I alarmed you at all? My wife and I live in 1800 sq.ft. single floor house in a small community in NC. She is in a wheelchair and with no one else in the house we make use of bedroom, bathroom, living room, kitchen and dining room and enjoy the space. I could not imagine living in one room like you are planning.
If you are able to tweak the plan and build on ground level - being on the same property with family isn't too bad, especially if there are nearby facilities you could use (senior center, parks, churches, library....). Just realize - you will need to be able to 'get away' from time to time. You need to really think about hiring a caregiver on some kind or regular basis (4 hours twice a week?) that can let you get out for a game of golf or dinner with friends, for example..
My sister re-modeled 2 spare rooms at one end of her house (bathroom between) for my father and his caregiver. This end of the house was then 'separated' by a sliding/folding' cabinet from the main house - so that each side could have some privacy.
The bathroom has grab bars for toilet (w/ bidet) and shower(zero entry). There is only a curtain to hide the shower, if needed... so that there is no obstacle to get a shower chair with wheels into the shower. The whole bathroom is tiled... but there are heating elements under the tile in the bathroom.
If you are going to turn one large room into 'everything' - you may want to try having a Murphy bed...less tripping on it. If you are on ground level - you might want to think about a large exit door (like French doors... and a ramp up to that French door. You may also want to have master switches for some of your appliances so that your wife can not accidentally turn things on .....
Having an intercom with the rest of the house would be helpful.
Good lighting, alarms on some doors/windows (possibly), cameras or monitors - that allow you to see her - when YOU need to use the bathroom.
One labor saving item for us, was having a Hoyer track mounted in the ceiling so that we could transfer my father from the bed to wheelchair or shower chair without too much lifting - once he was no longer able to bear his own weight for transfers.
If you can have a little yard/patio outside your French doors... you may be able to enjoy some private outdoor time too, with just a little garden, or fountain, or bird feeder, ...... if that is something that would be pleasurable.
Please try to implement as many safety, labor saving items as possible - life can be hard enough when caring for someone with dementia. Put some pleasures into this place -too, so that your days together will be as enjoyable as possible.
Overwhelming....isn't it?
I think you would be much better off getting someplace close by. There are many very nice assisted living apartments. You could have a social life and get aid for your wife. You said you are 80 or there-abouts. I am 85 and in the last 4 years years my health has gone down tremendously. You will not get younger or stronger.
Why are you leaving your house? If you have friends, and can afford it, I say stay. The move could be very confusing for your wife. So, you only use part of the house, so what? Have someone clean the unused rooms two or three times a year and leave the doors shut. I have two girlfriends who are widows who do this. Their places are paid for and they like the neighborhood.
Personally, I love my children, but I would rather live in a culvert than move in with either one of them.
For a host of reasons, already mentioned, I say, don't do it.
I can tell you lots more stories about dementia and how unmanageable the symptoms can get. I won't though, but I will recommend you think long and hard about spending lots of money to add a room over a garage when you may be needing to save that money for a Memory Care Assisted Living community for your wife. It often takes a team of 24/7 care givers to manage the level of care required by a person suffering the ravages of AD.
Whatever you decide to do, wishing you good luck and Godspeed my friend.
I would TOTALLY disregard any and all advice you get here, because in the real world, you have not provided enough information for anyone to even give you the slightest bit of good or bad advice. A professional who is well versed in all aspects of the aging process and you and your wife's condition, and if they do not drill down and ask you every single question possible that is catered directly to you and your wife's lifestyle and medical needs, ask for someone else, because they are not doing their job.
This forum is great, but you have a very complex situation and many questions , and what you have given us as far as your situation is the tip of an iceberg of your total life going forward, needs, wants, desires, and lifestyle you expect for you and your wife.
Kindly consider my advice, which is to get a qualified professional or professionals to come to you, and ask you the 100+ or possibly more questions that need to be answered to offer you options that you should investigate and finally choose, but have options within those options. in case the option you choose does not work as expected, and either needs to be changed, or modified.
Thank you, and the very very best to you and you wife!
From taz0921 ( aka The Tazzman )
We each bring our own perceptions and experience, and sometimes that may not be consistent or agreeable to someone else. But your blanket condemnation is quite strong. I would have to also ask why you feel we're wrong but you're not?
You suggested focus on Pha's and his wife's lifestyle and medical needs, to be evaluated by a "professional." What field? Would an architect be expected to have information on their medical needs? Would a doctor be expected to know about assistive designs to the point of being familiar with building codes?
These can be complex subjects and plans, and I think require contributions from professionals in affected fields. It's not a job for "a professional."
Mr. Eddie B can be easily led astray by taking one view, or two views or even trying to take all the views here, an finding out how many have the same things in common, and going with those, versus speaking with a host of seasoned professionals, each of which are familiar with a particular area of Eddie B's needs, and all who are experts familiar with huge lifestyle changes that many elderly folks, single and married may or must make, along with the necessary medical care for one of the marriage partners.
All of the suggestions here were given with, I believe, with great positive intentions, but these are the wrong people to ask for what Eddie B. and his wife should do at this time, and all aspects should be discussed with not one, but many professionals, who each has an area of speciality to give Eddie B. good sound advice with options.
The only error I will admit to is my lack of the use of plurals. Many different professionals in many different areas to speak with and drill down a host of questions and answers. This is not something to be taken lightly, and I have seen too many people use forums such as these for making their final decisions, without consulting with any professional(s).
So, I hope you are now satisfied, and I sincerely apologize for my lack of the use of plurality.
Stage Five: Moderately Severe Cognitive Decline
Major memory deficiencies are present beginning in stage five, and people in this stage of the disease may require assistance with activities of daily living, such as bathing, dressing, and preparing meals. Memory deficits in this stage are severe, with individuals often forgetting prominent bits of information that affect their daily lives – such as their home address or phone number. They may not be able to identify where they are (orientation to place) or what time of day it is (orientation to time).
Stage Six: Severe Cognitive Decline
Also known as Middle Dementia, marks a period in which a person requires substantial assistance to carry out day-to-day activities. They may have little memory of recent events and forget the names of close friends or family members. Many people in stage six have limited memory of their earlier lives and will also have difficulty completing tasks or successfully exhibiting cognitive skills such as counting backwards from 10.
People in stage six may also begin to experience incontinence of bowel or bladder, and speech ability is often diminished. Significant personality changes may also be noticeable at this stage, as individuals may suffer from delusions, anxiety, or agitation.
Late-Stage Dementia
The seventh and final stage comprises the final stage.
Stage Seven: Very Severe Cognitive Decline
Also known as Late Dementia, stage seven is the final stage in the progression of Alzheimer’s disease. At this stage, most people will have lost their ability to speak or communicate. They often require assistance with most of their activities, including toileting, eating, dressing, bathing, and other daily activities, around the clock. Because people in stage seven often lose psychomotor capabilities, they may be unable to walk or require significant assistance with ambulation.
On average, most people live between four and eight years following diagnosis. The progression of the disease may be different for each individual.
Im sorry I can’t advise you as you’d like - sure I could list a load of things, settings, furnishings that would help to a degree but I’m more concerned about both your welfare than just that of your wife’s needs.
Much as you and your family love your wife - you may find it better to have assisted care accommodation at this stage and see how things go.
My thoughts are with you - keep us informed