My Mother as bone cancer. Her doctor release her to live with a relative which would be me, no other sibling would step forward. She can not afford being in the Nursing home, have to pay $130 a day. She doesn't qualify for assist until her bank account is zero out. Her insurance will has ranned out.. So my question is how can I help get things rolling once her funds are low enough.. I have to quit one of my jobs to watch her all day. She can walk around and fed herself. She gets confused sometimes..But she can't be left alone. I've recent got my CNA license. Now have to turn down job offer to care for her. Really need advice on how I can get her settle in until I can get assistance and what programs will help me now!! She's stubborn when it comes to her going to a Nursing home. Does not want to live in one.. She has to have kemo once a week. Can you help me out. Confused. Happen so fast!
I don't understand, however, how her "insurance has run out." Was she unable to continue paying for it? Is she not on Medicare? More explanation would help.
Although I don't know specifically if they have referrals, Gilda's Club is an excellent resource center. You might contact them to see if they can offer suggestions on interim care until your mother qualifies for Medicaid.
Gilda's Club also has a lot of support to offer - specific cancer group meetings, pot dinners, musical events. If you can bring your mother to one, she'll meet others in similar situations and won't feel so alone, as many cancer patients often do.
For the chemo trips, if you're unable to take her, check with your local public transportation system to learn if they have a "dial-a-ride", "small bus", or specific service serving elderly or the ill which takes them from door to destination. Ours has one which will take someone within 10 miles from their house for only $1.00.
Check with your local senior center or google Meals on Wheels. If your mother is confined to the house until you are home with her or even afterward depending on which job you keep, you might be able to get MOW for her.
Have you considered taking FMLA from the one job instead of quitting it entirely? It may be that after you have arrangements in place you can still handle that job, or perhaps work at it part time.
If your mom is on Medicare, maybe her doctor can put her on Hospice. That would give you access to in-home care, DME and Respite days etc. But you mentioned that her insurance has run out? If she is too young for Medicare and lost her insurance through her employer because she is no longer able to work - she can apply for Medicare Disability. This would help with the bills.
I know your head is spinning and you are trying to make long-range plans with very limited information. Your mom is probably very scared too. And the last thing she wants to hear is that she will be placed in a facility with strangers.
I understand how this diagnosis turns your life upside down. If she is still able to walk and feed herself; make her as comfortable as possible (make meals at night for the next day); label things, etc. Talk to your employer to see how they might possibly accommodate your schedule. And get a prognosis from her doctor so you'll know better what limitations you are dealing with. Best thoughts go with you.
happen when she passes. Good Luck.
My girls have been told that the moneys we have put aside is for our care. My siblings all agree that Moms house will go for her care. This is how Medicaid looks at it. Why should the state carry the burden when there is a house that can be sold.
Did you talk to a social worker about. Om's situation while she was I. The hospital? They should become your best friend in these circumstances. They can grease wheels like you wouldn't believe. And they're fountains of information. In fact, even if mom's been discharged, I think they'll work with you.
If Medicare won't pay for.nursing home rehab, then spend whatever money she has on her care as you investigate her options.
Recognize that nobody wants to go to a nursing home . . . Just as no little boy or girl wants to go to the doctor for a,shot or to get a broken bone set. Yet, those in charge of caring for that little boy, little girl or oldster have to step up and do the right thing. Your right thing now is to align yourself with people who can help you and mom on her journey.
Call the local hospital and ask for the aging care group. They do wellness checks (phone calls) and can help you get set up for assistance.
The money is tough, my gran has way to much in savings to qualify for social security assistance. The good news is once her assets are below $2000, (I think) you can apply to get paid to help take care of her.
The biggest issue we have is the complete upheaval to our life. Basically nothing is the way it was before my gran moved in with us. Sadly her confusion/dementia is progressing rapidly. This makes daily tasks hard and tedious.
Hang in there and keep your head up!