Some more detail...I'm sure this is "normal" in my situation but I'm having a hard time handling it. I moved Mom into a senior community with support. This was about 3 months ago. I visit her several times a week. Today she told me that she wants to move somewhere else. She wants to move near my brother who is several states away. (IF ONLY!) Or into a place of her own. (She was in a place of her own nearby for the past 2 1/2 years and no longer remembers it.) Tonight she's calling me and accusing me of stealing her car. I'm truly ready to cry. I read the notes she writes and leaves all over her apartment about me stealing her money and taking her things. Again, I know this is "normal" for dementia...but it's causing me unbearable stress. I'm near the breaking point. Suggestions...Please!!!
My mother is encouraged to be hostile toward me so he wins in court. I have to say the break from caring for her has been less stressful than all the hostility I had to endure.
Hang in there, the energy needed to care for your parent can be overwhelming so remember to look after yourself.
Your children come before your mother.
It would be good to see you have a life outside of the home.
The costs to replace you would be shocking to Mom. I could
not be remembering correctly, but can she be left alone at all?
It is spring, hope things will go better for you this year.
I work from home, so I'd have to quit my job (self employed) to go out to find another. :) I'm trying to put off drawing my SS as long as possible. After last year, though, going out to find a job might not be a bad idea. It was a terrible year for making money for me.
My friend was being way too generous with gifts and tithes to her church.
Gifts to neices, nephews, friend's kids, etc. as she was at the same time calculating how many years until her money ran out. This was just not realistic, and I gently told her. I even went so far as to suggest she either retire the tithe, or give much less.
If a parent is placed, all their money goes to the facility, with perhaps a personal allowance of $30-50/ month. (As you are aware).
Tell your Mom that you will go out and get a job, she can pay caregivers to replace you. But instead, how about a one-time consultation with a budget-wise bookkeeper to come to your home and speak for you?
I was very hurt, devastated when dH did not trust me last year. This year, he thanks me for managing our money well. It was not me who changed the careful budget, but he changed his attitude. But it really really hurt to be accused. Or was I accursed or something?
My mil accuses everybody. It is not unusual and this is when we try to console ourselves, by saying its not them talking, it is the illness.
My sympathies to anyone being falsely accused.
Then she asked me where I put the savings account statement. Sigh. I told her she had it somewhere and told her how much she had. Still she knew that I had taken the statement. All we can do is shake our head when they do things like this. We know they're getting a valuable service for free, but their imagination can keep coming up with the silliest things.
It used to really hurt my feelings and make me so furious; but it took me forever (so let that be a lesson to you to go ahead and get over it quicker!!) but I finally see the humor and just go along with it. Last time it happened this winter (I stole her purse and wallet); i advised her she should go ahead and press charges and call her lawyer (I knew she wouldn't) not in a mad way, just a normal conversation. She said she'd think about it and we went on with the conversation. She forgets or denies by the next day. I know that now so I no longer get worked up over these things -- though I still find it unusual aspect of the disease that elders blame their own children vs a neighbor or stranger? Mom claims bad things about neighbors too however....
Also, when she gets really belligerent during a visit or call, I just cut it short and leave and just say Mom, I love you but i'm not having this conversation with you, you hurt my feelings. I don't listen to anything more and we just have a fresh start next time. I have the ability to avoid her calls and infrequent visits for my own mental health and that of my family.
She can't help it, she's 94 and very bitter, angry but won't accept help and doesn't want to make any effort to make her life change - so i've also had to accept that and make peace with that.
I can say -- don't take 7 yrs to get to this point. THis forum changed my life and helped me cope immensely -- THANK GOD FOR YOU ALL!! My life if truly better and my relationship with my mom is better or the best it can be at each stage of her increasing dementia.
I am the only child and I have to keep working, so there's no one who can take care of her at my home. I also was warned (on this board) to NOT bring her into my home, as it would ruin my marriage, wreck my job and take a toll on my health. Thankfully, I listened to them. It's hard enough to visit her. Honestly, I don't think I could take the continual repetitive questions, constant complaining of headaches and "itching powder", constantly rearranging/hiding everything, missing the toilet and needing diaper changes.
It is hard enough to do the physical care, but the mental confusion with accusations is unbearable. This is truly hell on earth.
I hope I die before it comes to this.
I'm another daughter suffering from an angry, confused Alzheimer's mother. As she was going into Stage 5, she became very distrustful of me, accusing me of horrendous things; stealing her money and objects, physical abuse ( I "threw her on the floor then stole her pain medication"), lying, molestation (that I was doing "more" than helping her bathe), she told her doctor that I was out to get her, etc.
I am her only child and have made huge sacrifices to keep her well cared for and safe. I have been investigated by Adult Protective Services because she was telling everyone at the Senior apartments, where she lived, that I was abusing her! These accusations cut to the core. I completely understand how you can't separate what is being said about you from the disease. I couldn't/can't either. How do you "get over" being charged with incest and physical abuse? We have too many emotions; frustration, anger, anxiety, disbelief, justification, confusion, apprehension, to process at the same time.
I think we believe that, even though they no longer have the power of clear thinking, things like THAT would never come to their mind. Where DID those thoughts come from? We really don't understand the disease enough to know. We also would never expect, in ANY mental state, that our parents would think that we would ever do those things. For me, there was no way to add "humor" to this situation. I had to put my mother in an Alzheimer's facility. She physically attacked me the next time I saw her. The nurse had to pull her off me. I was devastated.
I've been very affected by it, causing me to loose sleep, doubt myself, loose my hair, etc. I pray a lot. Occasionally, I would become anxious the day before I was going to see her. My husband would encourage me to cancel the visit, just to calm down. At this phase, I would occasionally take an anti anxiety pill before a visit. That's how upset I was.
The only good thing is that this will pass. Your mom will progress into another phase of this rotten disease. In my case, my mom (now in stage 6) thinks I'm her sister. This is great because she always has lovely things to say to me. I play along. We sometimes talk about her daughter (me) and she tells me how much she hates her. I play along by asking why. She'll come off with some crazy story (her daughter stole her medicine and left for South America) and I just go along with it. She's not accusing "me", the person sitting in front of her. I can deal with that.
Please don't feel bad about not being able to let it go or not being able to have humor make it better. Everyone can only handle what they can handle in a way that works for them. Know that there are many of us like you out here.
Don't force yourself to visit so often. Listen to your body, it's telling you something. Heed its advise. Take extra care of yourself while dealing with your mom. Do anything you can to defuse the stress (yoga, exercize, music, therapy, meditation, warm baths, back or neck rub, reading, etc.) Keep active and keep talking on this forum. May God help you find a solution to your pain.
My mom has lost the need to hold onto worldly goods which is mainly an identity process in that they say to themselves 'I am worthy of respect because I have been able to accumulate all these things' - I was amazed when she was finally tested & found to have moderate to severe dementia so your mom may be deeper into this slide than you realize
You're in a difficult stage of the disease especially if you're the sole caregiver
The notes, phone calls, nastiness and yelling are exhausting - I lived with it for quite a long while - that stage seems so long ago now
Do whatever you can to keep your cool - walk outside- go to your happy place - humor and laughter do help a lot
You're a hero for standing by your mom
Dementia is a long tiring journey for everyone
I would dial the phone for her sometimes to call one of the twisteds. Then mom would start whispering that we were to leave. Twisteds.sometimes helped, but other times, get suspicious themselves. They did not understand dementia and were in denial about how sick mom was.
Tell her a therapeutic white lie. The car is in for repair, it will be picked up in a day or two. Maybe she lent it to one of her favorite people. Whatever you think will calm her down.
There are times when I can honestly laugh and it is funny and it releaves the stress and pain when you can see them as funny and cute and silly.
There will be times when you are in a good place with her and then bang! She demands that you return her money or something out the blue. My mother would threaten me, bang on the door, curse me from my head and arms to my feet. Crazy. I can look bacck an smile. I know there will be more to come and if I have smile and laaughed enough its easier to taken the next labor pains when they come. Cause thats what it is pain but in your heart to be asccuse wrongly but especially of something you would not do and then by someone who knows you better than anyone (Supposedly).
Id say dont take it personnally. There's lots of good advice on this site so keep reaching out and posting your cries and hurt and pain it helps and you may get the answer that show you the light of the way to work it out within yourself. Good luck. My heart is with you.
I have watched really good professional caregivers use humor with their clients. Like for my Dad who didn't want a caregiver to help him with his shower because of his shyness, she said "Mr. Bob, I raised a house full of boys, there isn't anything I haven't seen". That got my Dad laughing and he got his shower.